life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


.

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Wednesday, March 28, 2018

So....Can I be a half badass?


So…maybe I am a “wanna be” badass!  Willing to write all of my feelings down, but not really
sure I want everyone to read them.  I am just now figuring out what my own heart is about.  I am scared to death to open myself up to vulnerability.  Afraid it would be so easy for someone to swoop in and undo everything I have figured out so far….so can I be a half badass?


"Hold On, I'm Coming"  Same and Dave

Tuesday, March 27, 2018

Until I pointed it out!

They got my name backward!  And…. I can raise hell, crab and bitch.  But….I cannot change it… my only choice is how I react. It is the only thing I have control over.  For a control freak…I tend to hold on to that one with absolute, intense sincerity!  So the question always becomes, when to let go and when to stand up or enforce my boundaries.  For all of the years I have donated and taught there at Casselberry, I thought they would know my name…so I think my feelings should be really hurt and a bit more offended than regular!  But what does it get me?  They will not reprint the poster.  I think what I have learned is that my expectations of having a little more attention in exchange for the time I have given them did not exist.  And NO, it does not work like that.  The lesson is…if I donate something even my time, I cannot expect anything in return. It was my decision to donate. The joy has to be in the act of giving, NOT in expected returns.  And the reality is…the font is so small, I bet I am the only one that noticed!
...until I pointed it out!
"No Such Thing"  John Mayer

Monday, March 26, 2018

Not my words, but it is time for me to embrace them!

'I think midlife is when the Universe gently places her hands upon your shoulders, pulls you close, and whispers in your ear:
I’m not screwing around. It’s time. All of this pretending and performing – these coping mechanisms that you’ve developed to protect yourself from feeling inadequate and getting hurt – has to go.
Your armor is preventing you from growing into your gifts. I understand that you needed these protections when you were small. I understand that you believed your armor could help you secure all of the things you needed to feel worthy of love and belonging, but you’re still searching and you’re more lost than ever.
Time is growing short. There are unexplored adventures ahead of you. You can’t live the rest of your life worried about what other people think. You were born worthy of love and belonging. Courage and daring are coursing through you. You were made to live and love with your whole heart. It’s time to show up and be seen.''      Author: BrenĂ© Brown
"Bruised not Broken"  Joss Stone
Several years ago I began going to a "Gifts of Imperfection"  book group and was so traumatized by the act of being vulnerable, that I dropped out after 2 or 3 meetings...I was able to hide my fear for a while but knew I would soon be exposed...and I left.  I left rather than letting anyone know how truly confused and vulnerable I was.

Or is it just plain selfish from another point of view?

That is a question I never thought to ask myself….Once you do the “until death do we part”  I think I assumed if I loved something…I was obliged to love it until… it…they…or I was dead.  I promise no one has ever asked me the question “Do you still love……?”  It is expected that all love is perfectly steady, never wanes and lasts forever.  But what if it is ok if it doesn’t?  What if love changes?  What if love expands to include more, or diminishes to become more focused?  What if my love of creativity becomes more about me and less about them?  How profound would that be?? Or is it just plain selfish from another point of view?

"Me"  Paula Cole

Sunday, March 25, 2018

but I might decide to do it again....anyway!

Ok…ok…ok…but….
Don’t you need to understand the negative situation thoroughly so you know what to avoid in the future?  Maybe I do spend too much time, giving negative people and situations my attention.  But I want to consume the entire experience; I want to understand what if any part I had in provoking the situation, particularly if I plan on doing it again!  There are some things in my past I can never change and some were my fault.  I have wondered if emotionally dragging them around my entire life may be why my physical heart is so sick…so, I am not going to hold on any more…I will look at it…make a decision…and move on…But beware, I might decide it is worth doing it again….even if you don’t like it!

  "Give Peace A Chance" John Lennon

Saturday, March 24, 2018

and....STILL working on it!

Somewhere between trying to figure out how I feel and what others think I should (or should not) feel there must be some kind of comfortable REAL!  There is a great swath of people that when they see who and what I am, are nicely complementary, tell me that they wish they could do what I do, and then they quietly back up and fade away.  Then there are others that see me and just out and out disapprove because I do not fit into what they think I should be…but in truth…I think most of them really just do not care.  Their mission is to make their own lives as comfortable as possible.  If anything about me is different, strange or challenging what they believe to be true then they either speak up to change me, or they walk away.  I just have to keep reminding my soul that I am not freakish or screwed up….I am just me and I am still working on it!
"Higher Ground"  Stevie Wonder

Friday, March 23, 2018

"Worthless Slug Syndrome" Cure

So here is a new/old revelation!  I have kind of applied this toward my art and studio for a long time.  It is Sark’s idea and she called them micro-movements!   I think I may have mentioned at least 47 times before in this blog how utterly frustrating it is to have this body “crap” out and just refuse to do what I want it to do.  It has become a huge source of frustration and wrenching depression! Why has it taken me so long to figure out that I can apply this to my everyday life?  The last couple of days, I realized I could apply micro-movements to all of my real life not just in the studio…. note: not because I planned it that way, it just happened. Although slow, I have accomplished some things, moving in the right direction, regardless of how much progress is made…as long as there is some progress… and it feels so so good. Feels like I am able to fight off the “worthless slug syndrome”.

           "Heart of a Hero"  Kathy Heller

Wednesday, March 21, 2018

A Control Freak...

Some of the most meaningful quotes seem so remarkably clear and evident that my first response is usually…" I need to do this….
DUH…who doesn’t know that!” BUT…when the time comes to apply it…it really gets tricky.

This is one of those that has always touched my heart, but I have a dickens of a time trying to figure out “when the time comes”!  How am I going to know when the time comes?  Has it already come?  There are times that I feel there has already been a “letting go”.  I really do not get upset about many of the things that I used to feel so adamant about.  I often wonder if this is about some of the natural progression of life, or is it that I have finally realized that what I think, what I want is only important to me.  I cannot depend on others to feel like I do…if I want it, if it is important to me..but then I have always been 
accused of being a control freak!
"No Time"  Guess Who

Saturday, March 17, 2018

Convincing you or me?

What most people do not understand about long-term chronic illness…is how much energy I spend convincing you that I am fine!  I know how uncomfortable you are around me.  I watch awkward reactions from friends and family that are unsure how to acknowledge or ignore this illness that is now a part of me. Being out in public or being around you does require some pretty impressive acting skills and some of us are better at it than others. The obligations as a parent, Nana, wife, artist or just a plain person that I never had to think about before now require serious examination of the amount of energy I really have as opposed to the amount of energy I think I should have. I am not sure where I fall on the performance scale or how believable I am but I think it is pretty good, you all tell me how great I look, even when there is an o2 tube poked up my nose…I find myself immersed in a chronic series of performances and I am never sure if the performance is to convince you or to convince me.
"A Little Bit Me, A Little Bit You"  Monkees

Thursday, March 15, 2018

Wrong Doing????

I have been around awhile….(ok, no tacky age comments please!) but I have never seen the amount of Evangelical, Charismatic and other Christians oblivious to resounding wrong, as I do now.  In an act of total disclosure, I was raised Episcopalian/Catholic and have never truly understood the evangelical or the charismatic movement. I do now have to wonder why so many of these faiths are irrationally upholding the validity of a man that lies, cheats, bullies, belittles, threatens and then pays off people to keep quiet? I have yet to discover any religious teachings that find this acceptable.  It has been my experience that all varieties of Christians have typically been committed to the archetypal biblical interpretation of forgiveness. As I recall from my old and current New Testament biblical studies, a condition of forgiveness is a penitent acknowledgment of the wrong/sin and a sincere effort to change and go sin no more.  When neither of these situations is evident why would anyone forgive and continue to defend, support and uphold such a person?  I support everyone’s right to practice their own religion, but I sincerely question and do not understand how religion is now being manipulated to rationalize unquestionable wrong doing.  
"Ave Maria"  Guy Farley

Wednesday, March 14, 2018

No One tells you about this part!


No kidding...NO ONE ...I mean NO ONE ever explains in detail about the parts between what does not kill you makes you stronger!  There should be some magic wand that I could wave and skip all of the cranky, pissed off, and grumpy before I get to stronger.  It just does not seem to happen like that!  I mean there are periods of wonderful enlightenment and strength but it is always followed by some degree of nefarious negative!  I mean the cruelest, most frustrating and damaging negative thoughts you could possibly imagine.  It is almost like bi-polar manic depression…and it sucks!  Sometimes I just need to retreat, lick my wounds and rebuild my strength (and that usually comes with creating)...over and over and over again!

"Nobody Ever Told You"  Carrie Underwood

Monday, March 12, 2018

I am OK with NOT knowing

It has taken years and years of being afraid I will be judged by the Christians in my life, but finally, I have nothing to lose, it is not about being judged and rewarded or punished.  It is about being honest with me.

I am “AGNOSTIC”. 
Wikipedia says agnostic means you believe  "the truth values of certain claims — especially metaphysical and religious claims such as whether or not God, the divine or the supernatural exists are unknown and perhaps unknowable.” Gnosis is from the Greek word knowing; agnostic is simply a state of not knowing.   It's a belief system that, according to a recent survey, is held by up to 23 percent of Americans. (Although, the survey also grouped atheists with agnostics, so that number may actually be a bit lower.)

Being agnostic does not mean I hate religion. In fact, many agnostics (like me) were raised Christian, and still consider themselves “culturally religious”. I do not reject religion as the one true way to a heaven; I’m just not convinced there is a heaven, hell, the underworld, purgatory, or aliens, ancient or otherwise. Everlasting life does seem to be the main objective of most religion. Leading a good life by the prescribed rules buys you a divine happily ever life after death.  Breaking the rules means there will be horror and pain after you die.  It is a simple reward/punish system that requires suspending belief in scientific laws. If or when I do good, it is simply because I love and it feels good to do so, not because there is a reward or punishment waiting for me after death.

“Occam’s Razor” is a scientific theory of dealing with problems with multiple and equal answers, makes sense to me.  It is the problem-solving principle that, when presented with competing hypothetical answers to a question, the simplest explanation that makes the fewest assumptions is typically the correct one.  I have observed that most religions are laden with stories of magic, the supernatural and other claims have scientifically been proven could not have existed then or now. I have also always been personally traumatized by the amount of heinous brutality committed in the name of organized religion with the purpose of promoting love. I will acknowledge that organized religion has inspired some of our greatest historical figures and some of the most giving, loving, kind people I know. But it has also provoked some of the most hateful, intolerant, hypocrites too.

I freely choose agnosticism; it frees me to think that anything concerning the spiritual, the sciences or the metaphysical is possible. Being agnostic means I can, and do question everything, and I am willing to listen to other intelligent opinions as well as my own heart and soul, to do the work and research to find out why I do or do not choose to believe.  It means I can question, be completely open to and genuinely value every spiritual belief system. It means that when I or other agnostics do something kind or good, we are doing it from our hearts, not because of the expectations of reward or punishment in the afterlife. 

Being agnostic brings me peace. I'm perfectly comfortable not knowing, or even thinking I'm capable of knowing all the answers to all the endless questions.  The fact is I think it would be pretty arrogant to assume that I or anyone else for that matter could ever know with total certainty that there is or isn't one or many divine beings out there calling all of the shots in the universe. Not knowing does not bother me.  I can accept the concept that all beliefs about life and death are based on unimaginable uncertainty. 

I am agnostic, the only mystical thing I believe in without question…is love.
"All That We Let In"  Indigo Girls

Sunday, March 11, 2018

Maybe not brave enough....


I could not imagine anything more wonderful than being selected to show my work among 52 other of the most creative women in Central Florida at the Osceola Art Center’s “Creativa” (Woman Made Art)  Exhibition…and then this happened!  Thank you so much for such an amazing honor!  Magic still happens!

It is a gift from the Universe  (and Osceola Art Center) when I am rewarded for pushing through fear, continuing to do what I am here to do, and that does not just mean creating, but being brave enough to keep putting it out there.  This is why I am here! Brave enough to work, Brave enough to show...Brave enough to be seen....but I did snatch ut the O2 tube off of my face before the picture and crop out the walker...so maybe not ready to be seen with all of my weaknesses.
"She is Not Afraid"  One Direction

Friday, March 9, 2018

Just "rambling"


I seemed to be somewhat blessed with words, but here is the thing….Are they the right words?  The more difficult the concept, the more words I write and I do tend to go on and on about nothing!  The quotes are rarely mine, and for the most part, credited to their author when the picture that I posted has that info, but sometimes it doesn’t…sometimes I will legitimately look for the author but sometimes not…I just needed a prompt and that day… that quote picture moved me for some reason…that part is simple! Sorry about that!  To all of the “real” writers with “real” words please accept my apologies.   I never called this “writing” it really is “just rambling” and for the most part, it is simple.  Thank you, Jack for reminding me….be simple.

"They Know"  Eric Bib

Thursday, March 8, 2018

When someone else says it so much better...

all I can do is copy paste and share...this is just perfect!  
                                                                                             IT IS PLENTY!


"Lay Down"  Melanie

Wednesday, March 7, 2018

Forgiving is not Forgetting...


Forgiving is not forgetting,
it is remembering without anger. 

I will never forget, 
forgetting would mean that I did not learn the lesson, that I am leaving myself wide open and even asking for the same painful experience over and over and over again.  

I will forgive, 
but please, never ever ask me to forget.
.
"Forgiveness"  Matthew West

Monday, March 5, 2018

I expect courtesy!

This makes twice in 3 days, I have felt like I needed to stand up and defend myself for what I feel is right and truthful for me.  The Universe is really teaching me how strong I am going to have to be. So, for those that have been so aggressive toward my opinions, I thank you for the lesson and opportunity to dig deep and find my own strength without hurt or anger.  I do not need to accept or believe what the majority or religion says to be a good person.  I am a good person.  I am allowed to have my own thoughts and opinions.  I will be honest, kind and respectful towards others. And I expect the same courtesy to be afforded to me, always!

"Haven't Got Time for the Pain" Carly Simon

PS...I find it more than interesting that each of the evangelical or sarcastic comments made about my political observation were made by men in defense of another man whose public treatment of women is intolerable.  I wonder if they felt waving a Bible or publicly embarrassing me would keep me, a woman from her feelings, her own heart, her beliefs, and her own political observations and opinions.  

Just because...it feels good!

Yup...it is a video...but it is worth the wait for it to load!

What I am....

Maybe it was just one of those weekends….Maybe it was the run-in with the healer/accupunturer/chiroprator/snake oil salesman…or maybe it was just time…this past weekend beat me up emotionally and I am so happy to see the structure of the week and Monday begin.  I know that must sound ridiculous for most, but after so many years of a traditional business week, there is some unexplainable feeling of structure and some mysterious power that comes with Mondays…when I had a M thru F job I hated Mondays…but now there is something quite comfortable in the feeling of starting again, fresh and new!  Welcome new week. I need to breathe in and remember who and what I am in the world.


"What I am"  Eddie Brickelle

Sunday, March 4, 2018

Red Flags!

Yesterday I had an appointment with an acupuncture physician.  My hopes were to find an alternative and somewhat familiar way to deal with some of the physical and emotional changes I am going through.  I thought that was a reasonable request…perhaps not.  The first thing was a diagnostic test to determine my problems.  I was to place my hand on a “cradle” of sorts that was connected to a computer screen.  Then the chiropractor, acupuncturist, disabled veteran, monk (no kidding he said he was a monk), gunshot wound, cancer/HIV survivor walks up introduces himself and begins looking and the print out on the screen.  Never opened my folder, never looked at my history and never asked me why I was there.  RED FLAG!
Oh did I mention that not only did the “hand computer diagnosis” determine which of my organs were not working at peak efficiency because of vitamin and mineral starvation ( now may be a good time to interject that 2 of the organs were reported as working within normal ranges… I no longer have.  No indication of heart failure or evidence of my implanted defibrillator)  but the “Hand computer diagnosis”… told him which of my vertebrae were out of alignment.  Less than 3 minutes into the “hand computer diagnosis” he began the natural supplements sales pitch. In addition the sale of supplements I also needed weekly chiropractic adjustment as well as regular acupuncture. He still had not asked what I wanted or why I was there.  RED FLAG is now waving violently.

I am now frustrated…here is another “medical” person whose primary purpose clearly has nothing to do with what I want or how I feel….but about how much I was fiscally worth to him…his bottom line.  He offered many times to discount his services…because he was a monk.  He claimed, more than once that he could make me better…he could “heal” me.  I respectfully declined the vitamin supplements and the chiropractic services and asked to proceed with the pre-paid acupuncture session.  As I lay quietly with the 10 needles placed in me, instead of relaxing and allowing the chi to flow, my mind went into high gear.  And this is what I figured out…
I value myself and how I feel…and he is not going to bully or shame me. I decided that perhaps he did not understand me, or maybe he never had a patient like me and before I get overly defensive and angry I will initiate one more conversation.  When the needles were removed I sat and said…”I understand your focus is on living well, but my focus for the time, is on dying well, perhaps we have something to learn from each other.” He said I needed to trust him and his methods.   He asked me to follow him into his office and offered another chiropractic discount that I declined, then picked up a Publix water bottle that he claims he had personally infused with his own special vitamins and minerals and that I need a month’s supply of.  I kindly raised my hand and said “no thank you, you are not listening to me” and I left his office.
"No"  Meghan Trainor

Caught in a picture.

For the past 5 years, the month of March meant Leesburg Art Festival.  I never intended for it to be, it just became.  Looking back I cannot tell you if it was a good thing or a bad thing….It just was.  It began in the way back in the 80’s and after 2 shows there, I knew this is not going to ever be a selling show and I never did it again until 2013, when I was asked to be the poster artist.  After several years of being off the art show circuit, I dusted off the tent and went back out on the streets.  Although there were sales, it was not enough to call me back as an artist but I did go back…as a creative facilitator, served on the Board of Directors, I helped with the “Patron Program”, I coached emerging artists program, and I did “Walk with the Expert” (it is too complicated to explain) but I remained a part of it.  This is the first year that I am not a part of it and it is a bit strange and liberating at the first time. Sometimes you get accidentally caught in a picture. I do not regret the “giving” I do regret the running away from me and my own work.  I got caught in my own picture of what I thought a good, successful, popular artist should be and quit being the artist that I am.
"I Don't Want to Wait"  Paula Cole

Saturday, March 3, 2018

Writing on the wall...

For years, the chalkboard paint on the studio door gave me a place to post important dates, schedules anything that would help me stay focused and organized.   And for the record…it never really did much good, but it seemed like a good idea at the time.  For the past few years, it has spent most of the time blank…not much of a schedule to keep…and exhibit every now and again…but that is about it.  The last few days I have found a need to write on it again, but not important dates but important questions and lessons.  I think I like this much better.

"So Much to Say"  Dave Matthews Band

Friday, March 2, 2018

Welcoming the wild thing!


My “wild thing” gets close to the surface, typically around the full moon.  I love how that happens.  But this time instead of just opening my arms and welcoming it…I want to figure out how to keep more of it.  How do I embrace the moon and really let go of what other people think of me or my work?  How do I honor my life like this all of the time, because if I don’t, who else will?  When it gets really hard, and I do know and accept that it will…It will be all on me…I know that those that love me will want to help, and I truly appreciate that they will try… but the truth is this is…I have to do this alone, and when everyone else’s time comes…they will too. I need to practice….practice…practice…living and loving and dancing and celebrating like a wild thing!

"Wild Thing"  Troggs

Thursday, March 1, 2018

I think it is the full moon that did ti!


Full Moon day….I love full moon days…Some part of me…some undefinable enduring part of me is mysteriously attached to the cycle of the moon…and the glorious full moon is dependably filled with feelings of energy, mystery and ecstasy.  Anything, any event, any feeling that shows up during the full moon is always filled with more intensity and meaning.  I know the moon will never let me down; it always arrives specifically when expected, month after month…year after year.  I do not allow myself any expectations but this one.  This journey has been learning how to not have expectations of anyone or anything…this part of life has to be done alone and often in the dark. But that glorious moon is the only part of my life that is predictable and dependable.  So I should not be at all surprised when Ed…(the hospice nurse)  said the fluid  in my lungs seems to have gone after a week of additional meds…I really did not have the heart to tell him ….the meds were good but I think it was the full moon that did it!



"Dancing in the Moonlight"  King Harvest





Or my favorite brother-in-law stops by with orchids to just say hello!  Oh my what a spectacular full moon day! How lucky could I get?  Thank you Larry and Adrianne!

Wednesday, February 28, 2018

Creativa!







Always more than honored to be accepted into any exhibition!  It is like a wonderful validation that the work I do has value.  But I am even more honored to be a part of an exhibition that is chosen from all of the extremely talented women artists from Central Florida.  Osceola Arts has such a wonderful creative space, the exhibits are immaculately curated.  They also have one of the best community theaters that shares the space.  It truly is a creative gem in this area and again I am so very honored to be a part of it!

"Get Out of My Way"  Ruthie Foster

Tuesday, February 27, 2018

Quality of life is where the healing magic lies...

At the risk of sounding morbid…and just a little demented….I have to say, hospice has been the greatest thing that ever happened to me. Nothing put it more succinctly than this slogan, which as it happens, is from the hospice organization that takes care of me.  After years of curative care that was full of chronic, invasive, and aggressive testing, treatments and surgeries, none of which have done anything that improved the quality of my heart or progress of the disease. In fact, I suspect it has compromised my health and it cost me a bloody fortune year after year after year literally eating up what little saving we had. 

They have without a doubt focused on the quality of my life.  The life of this disease has a certain path, but the quality of life is where the healing magic lies…I am so grateful for hospice…they know this!
"Arms Around My Life"  Janis Ian

Monday, February 26, 2018

no more....no more...

I try not to let my blog get too political; however, I will confess I have not been really that good recently.  It does slip in on a fairly regular basis and it is typically when I am so horribly frustrated that this is the only place I can share my feelings without being blasted like I get on Facebook.  I will say I had changed my strategy a bit and promised myself if I did extend my political view, it would be from a positive action point of view, not just bitching and complaining.  That went better but still drew really rude and ignorant responses.  It has occurred to me, no one wants to think…they want me to be wrong. 

I can no longer keep quiet and it was those amazing kids from the Parkland high school shooting that reminded me how loud and obnoxious I used to be about political issues…. 18-year-olds voting….stop the war…women’s abortions rights…  Then I got married, had children and turned into a big blob of milk toast.   I sincerely regret that.  But I will continue writing my congresspeople, Senators, State Reps…I will never ever ever give them a moment of silence, a meaningless prayer, any support or contributions.  They have cheated me, lied to me, and do nothing except line their own pockets with special interest contributions.  As long as you keep supporting them they will continue taking advantage of my complicit ignorance, they count on it…no more….no more.
"Got to do Better"  Eric Bibb

Sunday, February 25, 2018

Me and Jabba the Hutt

I suppose the character I like to be most is the strong, got my shit together, I can handle this woman.  The reality is I can pull it off most of the time but there are days that it takes all of my energy just to maintain an upright position.  The latest and often repetitive issue seems to be this fluid in my lungs and although it does not cause any pain, it really does keep me exhausted and tired…more so than the normal and holy crap that means all I do is sit around feeling like Star Wars “Jabba the Hutt”…Believe me…it is not pretty.  But in mine and Jabba’s defense…we are the ones in charge!
  
“…my kind of scum, fearless and inventive”  ~Jabba the Hutt
"In My Mind"  Amanda Palmer

Friday, February 23, 2018

I will do it again in a heartbeat!

Well crap…this is probably NOT the flu…more like an extremely heinous version of a raunchy cold!  It is also a stinking reminder that my immune system sucks and that just going out and being around people (Nude Nite, even though I was home by 10 every night) will kick my ass. But you and I both know that even though I am bitching now…I will do it again in a heartbeat!  bwa-ha-ha-ha!
"The Lazy Song" Bruno Mars
Update:  Well it looks like my lugs are swimming in fluid again...crap!  More meds...more take it easy...there comes a time when I just get sick and tired of being sick and tired!

Thursday, February 22, 2018

I am with the kids, they have wicked social media and internet skills and they know how to use them!


There is nothing that could have prepared me for the amount of senseless carnage that Florida now claims: Pulse, Orlando and MSD High School, Parkland. But nothing has surprised me more than the kids that are speaking out, factually, eloquently and with such passion!

As a child of the 60’s and now an adult active voter, I understand the level of frustration in trying to make meaningful government changes. But the thought of having today’s kids bring forth their passions with such mature effective actions never occurred to me.

These young people have been able to speak above the NRA and the ridiculous politics that adults play to make a point!  They are not afraid to say “the lawmakers have failed us” or “no, we are not going to be quiet and pray, giving our lawmakers, again, permission to do nothing while they maintain their NRA ratings and contributions”.  These amazing kids have taken the tools at their disposal and used the passion of youth and the pain of the loss to shine the light on the NRA and GOP’s unholy pseudo-Christian alliance that produces nothing but profit at the cost of innocent lives. These amazing kids identified a problem, recognized the causes and most of all they have wicked social media and internet skills and they know how to use them!  I am with the kids!
"Masters of War"   Ed Sheeran

Wednesday, February 21, 2018

"...starting to get it right."


Neil Gaiman said “The moment that you feel that just possibly you are walking down the street naked... that's the moment you may be starting to get it right.”


2 of my sculptures were just juried into the Casselberry City Hall exhibition “Contemporary Experience” and my fears and weaknesses will be on display. (March-April I do not have the specific dates)

“They See Right Through Me”

“When Boundaries Become Barriers”

                                     "Heal the Pain" George Micheal

Tuesday, February 20, 2018

denial vs. acceptance

I associate acceptance with defeat. That is precisely why I do denial so well!  Fully acknowledging my illness was never an option for me. Throughout the years, I would find myself drifting in and out of hospitals, doctors offices and testing labs in a daze – my mind shutting down, allowing me to believe it wasn’t my body the doctors were cutting, poking and testing, it just could not be.  I was sure that once I accepted my condition, it would never change.... I could never get better. 

That is why when I finally began needing “equipment” to maintain the life I love, that I finally allowed myself to acknowledge its presence.  I never wanted anyone to know I was sick. It was not just because I did not want your stares and pity, but a way for me to keep up the disguise while I continued to search for how I felt. 

 There has been a gradual shift in my thoughts when I discovered how much more I can do with “equipment”…perhaps this is what has finally allowed me to acknowledge my heart failure is part of me….I do love my independence and will fight tooth and toenail to keep it as long as I can!  It is a difficult balancing act...denial vs. acceptance.
"Black Bird"  The Beatles

No "wrong" answers

I think I can attribute 99% of my mental health…and for those of you that just lifted a closed fist to your mouth and coughed “NOT” ….I know who you are!  But really…I mean really I have found nothing more profound to my day to day happiness and frame of mind as writing every day.  It all began with Julia Cameron’s book “The Artist’s Way” and her daily creativity exercise of morning pages. I still do them almost every morning…there is something wonderfully cathartic about getting unseen, positive and/or negative feelings out of my body and onto a page.  First of all, it is wonderful to actually see a feeling become tangible in letters and words…I then have the choice of whether or not I want to pursue them, hang on to them, or let that feeling go.  When an emotion, a feeling, or desire it is on the page they take on a life of their own and I can look at it and make a conscious decision about what I want to do with it…deal with it, get rid of it, or save it for later…there are no wrong answers.
"The Way I Feel"  Gordon Lightfoot

Monday, February 19, 2018

it just means...I made a decision...

So this is what went out on FaceBook:

My new “SASE” Sit And Sip Equipment… it is a stay longer have more fun at gallery openings and art shows equipment! I can report that after 2 consecutive nights and tonight the 3rd tonight of “Nude Nite”...it is working great! Screw my vanity...I love a good glass of wine, hanging out with awesome art, friends, creatives and laughing! I will be doing a lot more of that from here on out!

What I did not say is that thing has been sitting at the house for well over a month…as I sat and starred and loathed its existence in my life.  I am vain…for the most part, I have been able to hide this disease and it is getting harder and harder and harder to keep my secret… I do not want to waste any more of my energy fighting the disease when that very same energy is what I need to live and celebrate my life.  So whatever I need now to keep celebrating is what I will do.  It doesn’t mean I have any less fear, it just means I made a decision.
"Breaking Silence"  Janis Ian

It's a Wrap! NN 2018 So much Fun!

....It is a video and takes it's time to load....Nude Nite 2018 was a great exhibition...these are just a few of the art, performances artists and dancers that I saw and liked...but just a fraction of what was there and unfortunately I took oodles of BAD pictures that did not make the video cut!  OOOOps!

Friday, February 16, 2018

I think it is absolutely necessary!

Nothing is as sweet as validation! 
To push beyond what I think is possible. 
To walk in a space that scares me. 
Then to put it out in front of strangers and risk humiliation may be one of the greatest act of trust that a creator does.  I trust the universe…It lets me know on a regular basis that being brave is what my life is about.   And sometimes…only sometimes does the universe literally scream back at me yes…yes…yes! 
And it did last night!  It is not about the money, although the money is nice…it is about following my heart.  It is about the universe screaming “Yes, Girl… keep doing that”.   If I get to choose to leave anything to the world…this is it….say yes…break the rules…do what your heart is telling you to do, it is ok to be scared, in fact, I think it is absolutely necessary!


"Heart of a Hero"  Cathy Heller

Enough to be different....

They told me and I listened….
I listened to my church.
I listened to the laws of the land.
I listened to “good” people that “loved” me.

So much pain and grief I have felt because they told me what was good and bad….

I believed them and I quit looking for who I was.  It was never right…it never made sense and every time I mentioned it, I was told I was wrong.

No one can tell me who I should be any more…I no longer give permission for anyone to condemn me for choosing a different path and I give myself permission to quit acting like I want or need your approval.
I am not a Christian 
the only doctrine I follow is love.
The laws are not always right,
people that break them and walk free every day.  
I will only defend love.
Good people, the loudest ones, 
chose what is best for them, 
they want me to be more like them.

I love myself enough to be different.

"If I could Change the World"  Eric Clapton

Wednesday, February 14, 2018

A naked exposed heart is so disgustingly poetic!

It never gets old…the excitement of delivery day came with some new crappy stuff.  I woke up at 4 AM  yesterday… have no idea why…just did…so I am going to chalk some of this to being excited about delivery day mixed with just plain lack of sleep tired.  Excitement and exhaustion stirred together with muscle pulls caused by pulling myself up and down in and out of the van and perhaps last nights chest pains have a simple explanation. These pains were different than I have ever had before.  I will confess for the first time I was kind of scared.  I have had two weeks of unexplained elevated BP, and when I ask why…The nurse looks at me over his glasses, with that “really, you are asking me that" look and answers with a hint of sarcasm…you have a cardiac condition.   It is the day before Nude Nite opens and Valentine’s Day after all...if my heart is going to act up… today would be the day.  A naked exposed heart on Valentine's Day is so disgustingly poetic!
"All About Your Heart"  Mindy Gledhill

Monday, February 12, 2018

The gift...

Delivery day is creeping up on me and I can feel the fear slipping in.  It is like all of the bubble gum I have stuffed in the cracks of my life are beginning to give way!

Every single year….The delivery drive to the “Nude Nite” venue feels like a slow walk to the gallows. A litany of questions unravels inside my head, as I get closer and closer.
“Do I belong here?
"They must have made a mistake."
"My work is not good enough!"
"Why did they select this piece?"
"If I turn around now and run, they will never know it was me.” 

As I pull into the parking lot, I wonder if the other artists are panicking too. Do they have the same list of ugly thoughts playing in their heads…or is it just me? 
 
After I arrive, climb down out of the van and walk toward the line of artists checking in, I keep my image turned in and clutched to my chest, I do not want anyone to see it. Somewhere in my ridiculous thought process, I still think I am keeping my option open and can turn and run the other way. Finally, it is my turn, the commitment is about to be made. Without emotion or approval, they ask my name, have me sign the legal documents, and hand me a brown manila envelope with my name on it, it contains a lanyard and comp. tickets.  I gather up the paperwork and artwork and walk into the gallery area where no one notices me, it is a simple matter of fact business transaction of dropping off art.  The curators will make the decisions later where and how all of this artwork hangs and the Installers will set about the job of hanging over 200 pieces of art.

I go to the empty spot I was directed to and stand long enough to take a deep breath, before setting my work down.  I feel everyone in the room is watching and knows that I am just plain not good enough to be here! After I set my work down and unwrap it, I finally feel brave enough to lift my eyes and look around.  All of the sudden it is not about me anymore! I am surrounded by the energy of incredible artists, artwork, massive amounts of glorious unimaginable talent, images that take my breath away and a feeling of incredible satisfaction and belonging envelopes me. I am surrounded by magnificent creatives and their work and energy.  Like storm clouds clearing, my breathing slows and my heart calms. At that precise moment, I know this is exactly what I am meant to do.  This moment is what makes all of the fear worth it…It is that fleeting but so very real moment that I feel the universe wrap its arms around me and lovingly tell me…this is who and what you are. I am embraced in the "knowing" like a big warm hug. This is why I am alive.


This horrible paralyzing fear is always going to be a part of the journey.  I do not think I will ever get used to it. I just have to know it will be there every time I deliver artwork for an exhibition.  I have to do the work, show up and move through the fear.  For this, I am rewarded with the unquestionable understanding that this is who and what I am in the world.  This is the amazing gift of being an artist that I do not think most people will ever have the opportunity to understand….
"It's Don't Come Easy"  George Harrison

Sunday, February 11, 2018

wasted time....





YEEEEE-OUCH! I do not think anyone ever taught me how to determine what is worth my time…I mean clearly, there was do a good job, take care of your children, clean your house and yard oh yes and go to church!  Sounded reasonable to me….everyone else was doing it…You know what else they were doing? They were talking about, criticizing, making fun of, and getting angry about anyone that did not do it just like they did.  I look back and I wonder…why did I ever care if they did it the same way I did?  After choosing not to do it “their” way, and yes a good part of that is a natural outcrop of age, I realize and grieve about how much time and life I lost…I am not wasting any more time!  Living, loving, laughing, nothing else seems important anymore.
"Light on"  Mark Ballas

Saturday, February 10, 2018

Speaking Volumes!

"Double Crossed" is a recent remake of an earlier version after a long sabbatical from layered paper pastel work.  It is a simple composition and a study of the theory presented by Dan Brown in his novels that featured the fictional character Robert Langdon, an ancient “symbologist”.  The author speculates that in the 15th -17th century and beyond, secret societies that were exploring mathematics and science were threatened as heretics by the Catholic Church. It became necessary for them to communicate publically through simple secret symbols.  This theory is more than just fiction and does have some examples and support of existence. Evidence suggests that the symbol for a female was the chalice and the male was the blade, both were physically iconic of the male and female sexual organs. Simply interpreted the “\/” became the female symbol of the chalice and the “/\” became the male symbol of the blade.  In exploring the theory,  I found it was much easier than I imagined incorporating those symbols in a piece of work.  I can easily see how if the symbols were kept simple in concept, that any piece of art could be speaking volumes and revealing secrets that the world is oblivious to!
"Who Says"  John Myer

Thursday, February 8, 2018

...do that

My soul often cries out for life and experiences that this world and all of its rules and regulations claim are irregular, immoral or just plain wrong.  I am learning to do them anyway.  The growth of my soul depends on me having the strength to move beyond what others think!  Sometimes it is so easy….other times it is quite a struggle…..but I believe, in the end, it is necessary and it will be so worth it!
"Never Going Back Again"  Lindsey Buckingham

Sunday, February 4, 2018

Things that make me smile....


There are times that I question everything!  And most things I have denied, done, pushed away have been done based on what I was taught or what others have expected...It is time for me to break those rules without regret and smile much more!  Perhaps it is time for me to question more what I think I believe to be true and learn for myself those things that make me smile!

"Smile"  Uncle Cracker

Saturday, February 3, 2018

This might work for me!

So there we are trying something different.  I am a self-confessed medicine weenie…and the last round of pain meds and all current available narcotic pain meds seem to make me sick to my stomach….not nice at all! So we are going to try to control the inflammation around my kidneys with steroids…YIKES…we are at the “damned if I do, damned if I don’t” portion of this program.  There are not going to be any good long-term answers, just temporary ways to control the symptoms.  Steroids scare the hooey out of me and when I looked up the side effects, I got even more frightened.  One of the common effects is a swollen or puffy face and neck…like I need that!  As tears welled up in my eyes at the thought of how my face might change.  I realized…this might not be a bad thing…if it stretches all of the wrinkles out of my face.  I mean don’t women pay big money to have collagen injections to “fill up” wrinkles?  This might work for me in several different ways!  Woo-hoo!
"Ob la di ob la da"  The Beatles

Friday, February 2, 2018

Others do not understand!!






All I can say is YES...OMG YES...YES...YES!



"It's a Beautiful Day"  India Arie

Thursday, February 1, 2018

On a Carousel...

One of the best days....
That day comes fairly regularly!  I get all of those things, amazing journey, responsibility, life quality and every Jan.1 I proclaim to myself this new sense of renewal and by Feb.1 it is over.  So the question is,  am I a big failure?  Do I just continue to set my goals way out of my reach?  Or (and here is the scary one) on some really sadistic way do I enjoy beating myself up by constantly failing?  And then the next big ass question is, if I recognize this failure merry-go-round, why the hell am I having such a hard time getting off of it?
"On a Carousel" Hollies

Daddy's Girls






Happy Birthday, Daddy!  How lucky we are to spend Dad’s 89th birthday with him.  And how can it be?  When it seems like just last week I was tiptoeing into the house past curfew!  Daughters…Sisters and most of all friends!  We are so very very lucky!


"Daughters"  John Mayer