life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Tuesday, December 31, 2013

2014...I Hope You Dance

Thinking about all that was done and left undone in 2013, wondering what is ahead for me in 2014.  As much as we are all told that we can accomplish anything, the reality is that sometimes it is not all in our control.  Regardless of how long and hard we try, sometimes it just will not happen.

The only thing I have total and complete control how I feel.
That is what I will be focusing on this year.  How do I want to feel?

      "I Hope You Dance"  Leanne Womack

Monday, December 30, 2013

Because I didn't...

Because I didn't is the the lesson that others should!


It is the best example of "Damned if you do  & Damned if you Don't" I can imagine. It is so easy to put my hope in other peoples hands, then suffer when things do not happen like I want them to. I have to assume at least half of the responsibility, I am the one that is willing to give up of my heart and hope to others . I have got to learn to own  and control my own hope. I cannot depend on anyone else...
          "There's Hope"  India Arie

Sunday, December 29, 2013

Perfect Girl....

Maybe it is me, maybe it is the size of the canvas, maybe it is working in a medium that I am not that strong or maybe it is some of all of the above...but I really want her to be a perfect girl, and it just is not happening!

    "Perfect Girl" Sarah McLachlan

Saturday, December 28, 2013

It Has Been a Phenomenal 2013! Thank you!

For everyone that has been part of my 2013, thank you....You have made my year spectacular!

Thursday, December 26, 2013

The Desire Map....Woo-Hoo!

The last week of 2013 is here and I am ready and excited about starting 2014 full of life, love, laughing and creating! Yes, there are a host of issues that will follow me from the  past into this New Year but I am committed to finding a new way to deal with them. I am so looking forward to meeting regularly with creatives reading and discussing the book“The Desire Map” by Danielle Laporte with them.  It already feels so good and so right!

            "Belly Belly Nice"    DMB

Wednesday, December 25, 2013


There is no other time that brings back more memories than a quiet Christmas morning.
The joy of that first Christmas day with Jason, after he spent weeks in the hospital. I brought my new born son home at 4 lbs 11 oz. for Christmas.
The endless Christmas eve nights spent up all night assembling toys and bicycles were worth every moment just to hear the 15 seconds of happy squeals when the boys first see what Santa brought. Darren looking at me and saying, “See Mom…I told you I had been good!”

Those Christmas mornings were wild and crazy, there was so much wrapping paper you could not see the floor, I ached for a quiet relaxed Christmas morning, now I would give anything to just have one of those Christmases back!

This year I had the most wonderful family gathering, took my grandsons ice-skating, had a perfect intimate "Enchilada Eve" with my dearest friend and some family, but Christmas mornings are where the memories live.

Remembering and grateful this Christmas morning.


"Hallelujah"   Hannah Trigwell

Darren got me new head phones.....mmmmm....

Thursday, December 19, 2013

Snake with Wings!

Every once in a while, I recognize an incredible special creative spirit! They are so magnificently evident,  it is hard to believe that anyone could avoid being pulled into their orbit. They have wild infectious uninhibited spirits, you are drawn into their world.

 And God bless the parents that recognize the gregarious talents. They nurture and foster these budding creatives to recognize and attain the full potential of their innate talents even when it is hard.

Way to go Miss Zofia!  You are indeed a star! Whether it is a snake with wings or the misfit angel of the Lord, you shine on everyone around you!  Thank you!

Breakthrough Theater, Winter Park
"The Greatest Christmas Pageant Ever"
Dec 18, 2013

Wednesday, December 11, 2013

sURpriSe !!!!!!

You all came together, surprised the crap out of me, celebrating my BA in Arts Administration (UMASS)! I have never been so grateful, touched and honored. No formal graduation could have ever meant more to me.

For 15 years, I have met with creatives every summer and each second Sunday of the month for the rest of the year in a little classroom behind the Casselberry Art House Gallery. We have been on a collective creative journey. We have held each other’s hearts, we have shepherded each other’s talents, learned how to let go of the past, honored our inspirations, to create, sing, dance, write, draw, sculpt, paint and use our bodies, our imaginations and all of our talents to the fullest. Then….we put it all on exhibition! It is far from the typical bunch of artists!

I have always wondered….am I good enough, was I making a difference. Frankly, most of the time, I have felt like a giant fraud and any minute you would all figure out that it has never really been about me teaching you, but the other way around, you teaching me. Over the years, you have all given me so much. The most incredible creatives have come into my life through that back room, we have learned, laughed, cried and grown together. You have given me the greatest gift, the gift of meaning to my art and my life.

I am so grateful to have you all in my life. Thank you Joy & Wendy for organizing, Thank you creatives, painters, sculptors, musicians, writers, drawers, family and friends, for being here, celebrating this milestone with me. Thank you all for the marvelous gifts, cards, oodles of champagne, killer cake, yummy food but most of all the incredible scrap book you made for me. Your kindness, your generosity, your love and all of your incredible talents will live in my heart forever. Thank you is just not a big enough word to tell you all how I feel! But, until we create a bigger better word it is the best I can do….again…Thank you all!

And no…… I still do not know what I want to do when I grow up!

"Thank You" Natalie Merchant

Sunday, December 8, 2013

Screw the Rules!

Mark Twain
I have spent a lifetime being (and not very well) what someone else has dictated I should be, following all of the rules. Most of the time I do not know who those “someones” are, I have never met them but they are experts and made the rules and I have followed them. How to look, act, how much money I should have, how a lady behaves,  how a mother should raise children, how a wife should honor her husband, when a mother in-law should speak, the list goes on and on.  I have done all of these things by the rules.  Sometimes they worked, but more often they didn’t. 
Every time they didn’t, I felt like a failure. These “someones” judge me, they are voices in my head, they are always critical, they always point out everything I have done wrong and continue to do wrong without any consideration to what makes me happy.

It is my turn to be happy…. 
As long as I am not hurting anyone else
 …screw the rules!
 "Back to Life" EnVogue

Saturday, December 7, 2013

VoG women...

You get one trip through life, how incredibly lucky I am to have these wonderful creative women on this journey with me! 

And wine....Yep that is it...
Wonderful creative women and wine!

       "Sweet Inspiration"  Elio Pace

Thursday, December 5, 2013

Learn it for Yourself

Lyrics from "For Good" from the Broadway play Wicked
They just spoke to me today!

I've heard it said
That people come into our lives for a reason
Bringing something we must learn
And we are led
To those who help us most to grow
If we let them
And we help them in return
Well, I don't know if I believe that's true
But I know I'm who I am today
Because I knew you...
Like a comet pulled from orbit
As it passes a sun
Like a stream that meets a boulder
Halfway through the wood
Who can say if I've been changed for the better?
But because I knew you
I have been changed for good

"For Good"  from "Wicked

Wednesday, December 4, 2013

My "BLOG" book is off to the printer...Woo-Hoo!

                           "She's Not Afraid"  One Direction

Tuesday, December 3, 2013

NOW... is the time....

I have noticed large amounts of grousing here lately. This is not an apology, I am not sorry but it is perhaps an explanation. Grousing and writing is how I process the anger and frustration I have when this crappy heart failure snatches life and profoundly influences my days, my decisions, and my happiness.

I look at myself in the mirror and I look deceptively well. I work at it! I want  me and you to believe I am normal but the fact is I struggle everyday. I have to struggle for normal every "effin" day!

Heart failure is the inability of the heart muscle to pump enough blood to meet my body's needs. Heart failure creates a nasty mess of symptoms, and every one of them piss me off, severe loss of energy, chest pain, shortness of breath, coughing, dizziness, confusion, fat feet, swollen stomach, and extreme exhaustion at the drop of a hat. What I once did with little thought or effort is now a flipping monumental undertaking. And when I do them any way (and most of the time it is so worth it!) I am out of commission for several days afterward. My entire body, organs, tissues, and brain are starving and screaming desperately for the blood that is being denied to them. Heart failure sucks, it is debilitating, and gets progressively worse with time.

Today is as good as it gets, 

it does not get better.
what EVER I have wanted to do
NOW is the time!

" I Haven't Got Time for the Pain"  Carly Simon

You Live, You Learn

and yet time and time and time again
I hand over my power
react wildly or inappropriately 
and then I wonder
how could they?
where is their heart, why don't they understand 
and the question really needs to be
Why did I give them that power?
Taking back MY power!

  "(You Live, You Learn) Jagged Little Pill"  Alanis Morrisette

Sunday, December 1, 2013

And She Smiles When She Feels Like Crying

And she smiles when she feels like crying.  An amazing amount of hurt and anger.  Why did I think time would change anything?  There are people in this world that will never understand. I cannot afford to give them any more of my energy.

"On and On" Gilbert & Sullivan

Saturday, November 30, 2013

RoAd tRiP

There are no circumstances that a "ROAD TRIP" will not cure!
Topping off the holiday weekend
with a birthday road trip trip to see all of my little guys, who by the way, are not so little any more!
A whole mess of them from 38 yr to 5 yr. all boys. Two sons, 4 grandsons. Two of them celebrating birthdays this week ....
All of them very BUSY!
Guaranteed to inspire me, or wear me out
Either way it will be so much fun!

"Hold On, I'm Coming" Sam & Dave

Friday, November 29, 2013

Damn....another cha-cha-cha

and another monumental round of the cha-cha-cha
2 steps forward, one big step back
I believe in magic...I believe in magic...I believe in magic...I believe in magic...I believe in magic...
I was not ready for this....but it is happening anyway
1-2 cha-cha-cha
3-4 cha-cha-cha

"Smooth" Santana'

Thursday, November 28, 2013


There are some women and most men that have been born and survive daily without the desirable “cooking gene”. Science has not yet unraveled the mysterious set of circumstances that prevent the cooking gene from developing in the normal human being. This DNA anomaly is a lifelong condition that literally millions of people live through daily! The most glaring evidence of this condition is an irrational fear of the kitchen, followed by panic out breaks in grocery stores and an inability to follow recipes. For those of us living daily without the cooking gene…..Cooking is just another household chore, just one-step above cleaning the toilet.

You can only imagine how terrifying Thanksgiving is for women (and most men) that suffer with “NCG” (no cooking gene). The entire annual holiday that is dedicated to cooking. Yes, they tell you that it is about giving thanks and being grateful, but that is a clever ruse.

To alleviate the stress brought on by Thanksgiving and NCG our small family will not be celebrating Thanksgiving in the traditional way! I will indeed be giving thanks, but not by using every pot & pan in my tiny kitchen, cooking bad food all day, washing, soaking and scraping all night, then stuffing a refrigerator full of leftovers that will probably spoil before they are eaten and eventually be thrown out. And of course the worst part, the incredible guilt I feel because by the end of Thanksgiving Day I have truly hated the entire experience, and am anything but thankful.

This year we celebrated Thanksgiving on Wednesday evening, said grace irreverently over a bloomin onion with a very tall glass of really cold beer, a perfectly cooked steak with all the trimmings, all cooked and served by someone else! A perfect evening spent in the company of dear friends and family with good food and marvelous conversation, my perfect picture of Thanksgiving.

So today, I celebrate Thanksgiving Day by gloriously reveling in all of my incredible blessings with interesting conversations, funny stories, being creative, watching parades and football
…..But.... there will be no cooking!

For all of my loved ones, family and friends, near and far, I am truly thankful, you are in my heart today and every day!

Happy Thanksgiving!
"You'll be in my Heart"  Phil Collins

Tuesday, November 26, 2013

Almost an Official College Graduate!

Woo-Hoo! ...BADLY Dancing my Ass off!

I am in the final approach, and got the official word from my academic adviser that all of my records, credits, grades are approved and I may file the official "Intent to Graduate".
I am a happy and I am dancing, and happy and dancing and cannot wait for this to be over.....
Two more weeks and I am an 
Official College Graduate from UMASS with a BA in Arts Administration.
This was a BIG ONE on my Bucket List.  Yay Me!

"Walk this Way" Aerosmith


It’s all about choices! I am strong because that is what I choose!  Crappy days will come. There is no avoiding them! It is how I get through them that defines who I am. And sometimes I forget how strong I can be. I am screwing up my courage, putting on my big girl panties. It is all about being strong.
I have been through the crap, I am still here, I am smiling and I am strong!

 "Strong"  One Direction

Monday, November 25, 2013

On these days…I Need This...

On these days…
It is harder than it should be, it takes longer.
Proportion evades scale,
perspective is skewed.
I cannot trust my own emotions, they betray me.
I am incapable of receiving the love I do have,
Focusing on the pain of what I do not have.
I know these days are necessary,
But do these days have to hurt so much?
On these days…I want to quit, I need it to stop!

I need, The darkness, The sweetness, The sadness, 
The weakness, I need this
I need A lullaby, A kiss goodnight, The angel sweet, Love of my life, Oh, I need this

"My Skin"  Natalie Merchant

Sunday, November 24, 2013

Scratch it and Get Glad

I had an unusual mother-in-law that had the most marvelous “one liners” and my favorite was “Scratch it and get glad"  I think it basically means crap is going to come into our lives…everybody is going to get their share.  And although in theory is misery loves company, the reality is nobody loves misery.   Misery may gather a crowd for a little while, but it will not last and  in the meantime, the crap takes over your life. If you want a happy life, full of friends, life and love, "scratch it and get glad"!

"Put the Lime in the Coconut"  Harry Nillson

Saturday, November 23, 2013

"Don't Give Up"

A wonderful day, a wonderful friend that has survived the most painful loss any woman could possibly imagine continues to teach me every day, that no matter how hard it gets, how much it hurts, how many times I cry, I need to be strong, do not let the past take away my power and don't give up. Pain and survival pull us together.  It provides an unspoken but incredibly strong bond.  It is through that bond, that her words carry immense significance, and when she tells me just be the best I can be today and whatever that is, she will stand beside me. I believe her with all of my heart. Thank you for a perfect day! Thank you for my incredibly creative, strong, deep thinking, open hearted  friend. I am so lucky!

"Don't Give Up" Herbie Hancock, Pink, John Legend

Wednesday, November 20, 2013

Art...Art I want you!

To be in the company of 2 other dear VoG women made it a great evening.
Surrounded by art created by children was fun and inspiring!
VoG Women, engaged in art and life.
How lucky I am to have these women and art in my life.

                   "Art" Tanya Davis

Julia Child is one of my all time heroes, not because I like to cook, as a matter of fact I hate to cook!  But she has always been my living proof, that passion about creativity transcends all cultural expectations of success. She always did what she was passionate about.  She was admired, loved, and incredibly successful in the eyes of those she loved and the public, even though she was not young and physically attractive.

Tuesday, November 19, 2013


MiSTAKES.....I have more than my glaring and obvious share of them.  I have many many many "rip roaring cannot believe she did that" others to choose from.  The choices are virtually endless, but every one of them came with a wonderful lesson. If the truth be known, I suspect it would work out to be about a 50-50 split, good to bad lessons.  But, if I knew then - what I know now, I would have made a whole lot more mistakes, and loved every minute.

Stand back, I have enough time, energy and inclination to make a whole lot more amazing mistakes….Ooh La La!

          "Ooh La La"  Faces (Rod Stewart)

Sunday, November 17, 2013

How Do You Let it Go?

When you spend a lifetime creating, gathering, holding on to, and shaping life, letting go is a difficult concept to wrap my heart around.  I cannot allow myself to stop creating, loving, laughing, living, but I do so knowing that at some point I will have to let it go.  It is a new element in everything I do and it makes every day, everyone and everything full of more importance and passion.  No one shows or tells you how you let it go, I am figuring out how to do that on my own and it is not easy.

         "Into the Mystic" Van Morrison

Saturday, November 16, 2013

Say Things

Depending on words... More so than ever before, between school and the computer.  Finding a level of frustration rising as I spend less and less time in the visual and more and more time with words.  The words are ok, and I find that I can express myself adequately, but not the same, not the same as colors and shapes.  It feels like wearing  gloves to thread a needle.  I will try to communicate a feeling but the intensity will just not be there.  I respect the talents of writers more and more every day!

"Shape of My Heart" Sting, Josh Groban, Chris Boti

Thursday, November 14, 2013

As Soon as They Know

Sometimes the hardest part of this happens when they find out or when I tell them.  Some are able to take it in stride, a short hick-up, and an I “never knew” and we move on, others seem almost betrayed, hurt and afraid. They will smile politely reply I am so sorry and in an instant I can feel the emotional withdrawal begin and they quietly back out of my life forever. Where is the book that teaches me how to do this?
The one thing I know is…. as soon as they know,everything is different and that is the part that I hate the most…I am still me nothing has changed! .

"All We Are, We Are"
 Matt Nathanson

Wednesday, November 13, 2013

Boom shaka-laka... Boom shaka-laka

Ever have one of those days that things feel like they just might go right? Of course after yesterday…that would not be hard.

First I was stood up for a lunch date, nothing more humiliating than being seated by the hostess who has been told you are expecting a second.....that never shows up.  You know they are all staring!   So, do you pay for 1 iced tea and slink out or order lunch, like I am a strong, independent woman.  I came here....a a booth...ON PURPOSE!  The broccoli cheese soup was spectacular!

Then in the midst of communicating with the state government and uploading requested information to their web site my internet/cable goes down. As if communicating with the government and navigating their red tape was not already fraught with technical difficulty!

The afternoon was peppered with phone calls from grown children wanting to know what the Thanksgiving and Christmas family plans were. (which evidently I have not done anything about!)  Crap, wasn't Easter last week?

Then showed up for a board meeting whose location had been moved, and I missed the memo on the venue change…..ooosh, how embarrassing.

Having survived yesterday I am due for a little boom shaka-laka!

Bring it on!
" I Want to Take You Higher"  Ike and Tina Turner

Tuesday, November 12, 2013

We all do it the same….

"But we never say a thing and these crimes between us grow deeper."
Often wonder when all doing it the same became what we want in life.  For many years it was all I wanted.  To be the same, to not stand out, to be perfectly normal, conducting myself in the socially accepted manner that commanded the admiration and attention…..of who?

Now...I want more than anything to
not be the same!
"When all the little ants are marching-Red and black antennas waving 
They all do it the same-They all do it the same way"

"Ants Marching"  Dave Matthews Band
all in a row

Monday, November 11, 2013

Slow down, Hurry up, Take your time, But I am not finished yet!

They say “slow down”  enjoy the journey, smell the roses
I say “hurry up” There is so much I want to feel and do
They say “take your time” you move to fast, be patient
I say “but I am not finished yet”  is there enough time? 
patience queen 

"I Don't Want to Wait"  Paula Cole

Friday, November 8, 2013

Arms Wide Open!

Standing with arms wide open, waiting for my next! 
Being open for what comes next does not mean I am not worried, excited and nervous about what comes next! I have no idea what “next” is going to be, but I do know it has to be something new and different , it just has to be. The old comfortable knowing  no longer connects with me and I am feeling stagnant and stale. 
I am ready for my "next", take me there!

"I'll Take You There"  The Staple Singers

Thursday, November 7, 2013

Pick a Good one...

All the years growing up, the years of young motherhood, the years of corporate politics, the years of family dysfunction and not one time in my considerable life did anyone tell me I was in charge of my own moods! I have to wonder how different things might have been if I was in control of emotions and moods rather than the other way around.

I still do not have total control over this, every now and again there is a foul mood sneak attack. The "I am mad at the world or vice versa the world is mad at me", "I feel so sorry for myself", and my personal favorite "nobody loves me" nasty moods will slip into my life when least wanted or expected!

For the first time in my life I have figured out that for the most part, I am in charge of my moods and to bastardize the words of Scarlett O’Hara “as God as my witness, I will never” be in a bad mood again. I am only picking the good ones!

There is beauty in the world I just have to know it is there and figure out how to see it. I am in charge!

"There is Beauty in the World" Macy Gray    

Wednesday, November 6, 2013

Moving On....

Accepting reality, looking at every situation for what it really is instead of what I want it to be….and MOVING ON. I think perhaps artists and creatives may have a harder time at this than most “normal” people.
But maybe my inability and/or unwillingness to accept ugly reality is what makes my life wonderful!

"Peace be Upon Us"   Sheryl Crow

Sunday, November 3, 2013


In some ways, I’m afraid of writing, or some part of me is afraid of what people will think about me. I've written some things here that I would be afraid to talk about with any one. Yet I still write here because – well, I need to reassure myself. If I can write about it, I have lived through it, I have survived it and I have learned from it. Here, I am myself, as much myself as I can be through words. Here I am exposed.  Most of my heart, fears, doubts, happy days, and celebrations are here. That’s me, here behind and in between these words.  

"ME" Paula Cole

Keep Moving

My heart and soul had run dry and I looked outside of myself for help. At first it was not easy, I felt like I was giving me and my power away to fill those empty places, but when it brought so much incredible enjoyment it became easier and fun.

Now, when I stand outside my situation and observe.... I am watching those fun and fulfilling expectations turning into needy frustrating dependency.

I am learning that expectation is stealing my power and dependency embezzling my happiness.

If I want to keep my balance, I cannot expect or depend on anything from anyone but me.
I must keep moving.

"What a Fool Believes"  Doobie Brothers

Saturday, November 2, 2013

The Spark of Passion

I take a deep breath and silently ask my heart 
for the strength to never ever listen to anyone 
who tells me to stop being myself. 
Then I promise my heart 
to forever embrace my eccentricities. 
To breathe in the spark of passion
that lights the fire in my soul
and to always surround myself 
with the wild energy that makes my heart tingle.

"Let it be Me" Indigo Girls

Friday, November 1, 2013

I am

I claim to be all of these things,
but in reality,
all of them are much easier said than done.
For the most part,
it is a theory I subscribe to
but talking about it
and doing are very different things.
It is time for me to quit talking,
step up to the plate, and start doing.

I want to be.

I am.

"Superman"  Five for Fighting

Wednesday, October 30, 2013


The world does not expect me to be happy, powerful and loved.

I take away the power of unrealistic and false expectations,
every time I smile, giggle 
and do something I am not supposed to do!

Laughing, living, loving, creating, dancing
and incredibly grateful every day!

F-ing"expletive"  fEaRLeSs…..

"All Right Now"  Free    

Tuesday, October 29, 2013

She Did it Anyway

I have been thought of, and sometimes called (to my face)
and uncontrollable. 
I probably deserve these adjectives and others. 
I do not think they mean to hurt me, maybe they want to 
preserve me, 
slow me down, 
protect me, 
keep me, 
shelter me,
but every time I hear one of those words,
I am weakened.
I have a voice,
I am going to do it anyway, 
because I am incredibly alive, I am brave and
I have so much more to do!

"Strip Me"  Natasha Bedingfield

Monday, October 28, 2013

Willing to play the game…

I had to be willing to play the game, before I was comfortable enough to change the rules. The rules are like insurmountable walls created by nameless people and entities that are established for the purpose of controlling me, my behavior and establishing socially accepted winners. Some rules are good and necessary, but in life and in art I am learning how and when to break the rules to create the art and the life I am craving.

To truly live and understand life and creativity, I have to be patient, I have to be willing to play the game by the rules before I can know how to successfully bend and break them.

"So, don't mind if I fall apart...there is more room in a broken heart.  I believe in love."

       "Coming Around Again"  Carly Simon

Sunday, October 27, 2013

The Bad Place

Why am I so quick to go straight to the bad place? 
Every time things do not go as I expect them to, 
my brain will “go to the bad place” 
and begin unpacking  the worst case scenarios. 
They are always negative.
I am not good enough...
do not do enough, am not smart enough,
forgot, said too much, did not speak up
am not young enough, do not make enough money, 
not skinny enough. 
the list of bad places could fill this page.
Why do I go there?

This time......I am going to another place!
"Everyone's Gone to the Moon"  Chad & Jeremy

Saturday, October 26, 2013

Nobody ever told me

I have had a life full of being told 
how to
what to
and when to
No one ever told me to 
Just be who I am.
To look into my own heart
do and follow my own dreams.
Nobody ever told me
Just be who you are!

"Nobody Ever Told You"  Carrie Underwood

Friday, October 25, 2013


I am watching chaos dance around my life, not in my life, but all around me. I find myself dodging chaos at all costs and I begin to question whether or not chaos is just a part of life. Is there some connection between chaos and passion. Could it be unbridled passion creates the chaos and/or does it feed the other way also, does the chaos ignite unbridled passion.

Am I doing myself any favors by avoiding chaos at all costs?

"Just Dropped In"  Kenny Rogers and the 1st Edition

Wednesday, October 23, 2013

NOT Stopping!

hmmmm...I hear this question a lot...
and my answer is

I do not know what the hell I am doing...
But I am not stopping!
                                            "Pata Pata"  Miriam Makeba"

Tuesday, October 22, 2013

Day #1 Year #5

a fighter
dancing through the fire...
turn it way up!

I am Making Progress!

There can be no doubt that I am making amazing progress, because I am making colossal new mistakes!

I try so very hard to NOT let my heart take the lead in my life…but it sneaks up on me and when I least suspect it
oooooooosh……NEW MISTAKE….
 I wish life came with operating instructions!

"Reflections"  The Marmelade

Monday, October 21, 2013

What Does Bohemian Mean?

I wish it made more sense!

But I would not count on it!  

If it does not speak to our hearts and passions, there is a good chance we cannot-will not behave in ways that are expected.

Fear, everyone is doing it, or those are the rules, will never be a good reason to perform, conform, change our minds or agree.

What you can expect and count on from me or any other self-confessed Bohemian is complete focus and dedication to an ideal, concept,  person, organization,  etc. etc. that touches our hearts.

We operate from the heart and in all likelihood will be the most authentic, honest, trustworthy people you will ever know.

Celebrate the Bohemian in yourself and others!

                                           "I'm Free"  Soup Dragons

Saturday, October 19, 2013

Happy Heart.....4 year Anniversary!

Every October while everyone else is promoting pink for breast cancer,
I celebrate RED.... for my heart!

Four years ago this week I began the most incredible journey of my life.  A massive heart attack, an aortic pump, a stent and a week in intensive cardiac care left me with significant left ventricle heart damage. Alive... it was an ugly life wake up call.

The first year I spent in denial, chasing cures, stem cell trials, and surgical options. I was willing to take any chances to fix my broken heart and get my life back. I finally gave up when the high risk thoracic surgeon at Shands said that the surgery could be life threatening. My arteries would most likely not hold the grafts, restarting my damaged heart after by-pass could be difficult leaving LVAD as my only option for heart function. The best possible outcome, was not worth the risk.

The second year I was alone, unfixable, angry and still in shock. I was not prepared for any of this and I refused to accept it. I was mad, felt sorry for myself, whined and cried a lot! (and as it turns out, I am really really good at bitching, whining and crying!)  Seven magnificent creative "VoG" women stood with me and held me up when I did not have the emotional or physical strength to do it on my own.

The third year I realized I was still here, still alive. I began creating and writing again. I realized I was wasting my precious time and aggressively began the war to take my life back. My creative heart led the charge.

And this, the fourth most glorious year,  I am learning how to embrace compromise and work around the physical difficulties. I can still love, laugh, create and celebrate my life.  

I cannot wait for my fifth year to begin.  I have so much more to do, to experience, to create, to live, to love and to learn.

Happy Anniversary to my most amazing heart, that against the odds continues to support me and the life I love every day....every day!
                                                                                  Now....I live every day! Now....I love every day!
     "Every Day" Dave Matthews Band

Sometimes I am Terrified

At times our own light goes out and is rekindled by a spark from another person.
Each one of us has cause to think and 
have deep gratitude to those who have lit the flame within us.
On an early full moon morning I finally screwed up my courage
and allowed myself to be weak, 
admitting that
I need,
I want
 I love. 
I can write it here, without fear,
but I am still afraid to ask,
 and honestly tell another person 
how and what I feel.

                                                       I do not regret exposing myself, 
                                         but I am still afraid that openly expressing my feelings
                                                  will compromise how others see me and  
                                                          undermine my own strength. 

"Strength, Courage & Wisdom"  India Arie

Friday, October 18, 2013