life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"



Sunday, February 19, 2017

The thing about annual events....

Hanging up another lanyard and thinking about how honored and how much “holy crap” fun it has been to be a part of Nude Nite  this year and for the past 5 years. It was one of my early on “Bucket List” wishes. The thing about “annual” events (birthdays, holidays, etc…) is that when they are over, I begin asking myself….is this my last one. This year’s events seem to be a bit more emotionally charged…

"Save Me"  Goyte

Friday, February 17, 2017

This "NORMAL" you speak of

And every attempt I have ever made to be that way has ended in me feeling really awful about myself.  So I just need to quit doing it.  Every now and again, when I have the opportunity to step out of expectations and just revel in the moment it is amazing.  When I truly embrace the NOW, forgetting what happened yesterday, not worrying about what will happen tomorrow, just being in the joy of the art and creating I feel terrific, unstoppable, free and not sick.  When you get entrenched in the medical world of measuring, where there is a clear and defined normal, being in a place and around people that defy normal…..That is when I feel so good! 

That is the MAGIC and it is anything BUT normal!

"Can't Stop the Feeling"  Justin Timerlake

Thursday, February 16, 2017

She is not Afraid!

I LOVE Nude nites!
The art is always amazing, and it is again this year….and maybe even more this time.  It is absolutely incredible to see one subject interpreted in so many different, talented, awe inspiring ways!  So fun and so honored to be a part of it again this year!

And yes….that is oxygen on my face.  The first time I have worn it in public.  Had a great sweater wrap so the portable tank could not be seen,,,but the crap on my face, is kind of just there. I was there for an hour and half, drank wine, admired ALL of the work and of course talked, giggled and gossiped all the way ….never coughed once or ran out of air.  Its ugly…it feels funny, I don’t like it…but I think it works. .  As much as I hate….hate….hated it…It really made me feel great, like the old me.  
"She is Not Afraid"  One Direction

But...when I turn on the TV...

I know I promised I would be better, but when I turn on the TV and find out....

#1  If you are mentally impaired so severely that you are receiving social security and deemed unable to manage your own finances…GOOD NEWS…you can now legally purchase guns. Did Sandy Hook or Pulse mean anything?  

#2  "Leaking” the truth is illegal and will be prosecuted, but the National Security Adviser lying to White House is SAD, caused by FAKE media.

I just cannot be silent.  I do not want anyone anywhere to ever think that my being silent, well behaved, lady like, polite means I am OK with this.

What the hell is wrong with this GOVERNMENT?  #45 is a self-serving narcissist!


Running out of socks to throw at him on the TV may have to go dig out the dirty ones... damn.... I should have thrown those first!

"Liar Liar"  The Castaways

If you ask me…(and I assure you, no one has)

...this passion is the secret to life!
Looking back I can say with all certainty, if I did not love what I did I cannot imagine how my life would have looked.  For most of my life….I have worked like a crazy person, always more than 40 hours a week, rarely getting paid enough (if at all) no paid holidays, no weekends off,  no health insurance or 401K benefits.  And still I did it, reveled in it and would not have considered trading one minute, to work for something/anything I was not passionate about.  I am not grieving about the lack of commercial, financial success I have not had, I am celebrating and grateful for the people and the circumstances that have allowed me to follow a life that has and continues to be full of passion! And even now, with all that is going on, I can still do what I love doing!  Thank you I am so very grateful!

"You have Lived"  Don McLean

Wednesday, February 15, 2017

Really going to happen!

Docs have given me the "OK to GO", getting me a portable O2 concentrator! Flight itinerary set, tickets purchased, hotel reservations made….this is really going to happen! A full week of drinking in and celebrating art created by some of the world’s masters.  Tickled to be staying in the upper West Side 2 blocks from Central Park close to some of the greatest museums….out of the hub-bub and in the neighborhoods! Picasso…here I come!

"59th St. Bridge, Feeling Groovy"  Simon & Garfunkle

Tuesday, February 14, 2017

"Say What You Need to Say"

The “girls” are on their own, now!  They are officially delivered, and are among some of the most spectacular works!  I am always overwhelmed to have the opportunity to be in the company of so many incredibly talented artists. 
I love that after I had chosen to do a piece honoring all of the women that marched in Washington and around the country that they titled the show “Revolution”  I really like how it fits together.
"Say What You Need to Say"  John Mayer

Delivery day.....

Delivery days are heinous!  I suspect  most of the world thinks that artist’s delivering their work for an exhibition should be a wonderful exciting thing….and yes there is an element of exciting but….holy crap…most of all it is just plain scary as hell!  When it comes to delivery days….every single bit of  “I got my shit together” attitude goes right down the toilet… a single flush.

The best way to describe it, is like being a 13 year old girl again on the first day of a new school. The only difference is, it is about the art I created rather than the dress I chose to wear!  As a 13 year old I am hoping that dress will help me feel like I fit in and am good enough. It feels like the room is “judging” me by the image I am delivering.  All of the sudden that image that felt really good in the studio is now triggering a zillion  “who do you think you are” nerve endings!  And opening night…it will only get worse!

"Fear"  Jazmine Sullivan

Sunday, February 12, 2017

Is it live...

or is it memorex….…..or is it just fear. 

It is hard to know sometimes what this body is or is not going to do. It does not seem to be my body anymore. It operates totally independent of my wants, needs and wishes…. and that is the one of most difficult parts of this!  It is the question I ask myself each time I want to do something and I am not so sure (or am afraid) that I will not be able to.  So rather than risk failure or worse “pay” for it with absolute inability to do anything for the next day or so. I find myself “conserving energy” or at least that seems to be the acceptable medical explanation for giving up, making tradeoffs and deciding what are the things that I really want to accomplish.  Is it giving up…giving in...or is it just fear?

"You Can't Rush....."  Trevor Hall

Friday, February 10, 2017


I need to remember this and read it to myself....every day!
"Who Cares"  John Mayer


When I finally decided to let go, I find that I am at more peace than I thought would be possible, and life seems to be moving at such a fast pace.  It could be that it is just a short period that things happen quickly like they do in all of our lives, but I thought it was worth paying attention to, especially since I am fairly used to things going “not so great” and I am in constant “stamp out the fires” mode.  I have had so many amazing and spectacular things happen in the last couple of months, that it is really hard to get used to.  I know that most people think that this is the part of our lives that we should be the LEAST ok, On some level I think that is what I expected, too.  But that is not how it seems to be happening, at least for now.  So it is definitely worth paying attention to.  Just being OK is really a wonderful thing!

"Details in the Fabric"  Jason Mraz

Thursday, February 9, 2017

Wednesday, February 8, 2017

Burning bridges....

I have to confess, that I have felt guilty for “unfriending” and burning bridges" with many politically militant FB friends.  The rhetoric kept getting more frequent, more combative, less factual and just plain hateful. At a certain point I would AX them and then feel guilty that perhaps I was editing my friends to only include those that agree with me.  And now,  I have decided it is ok, even more than ok!  There is a huge difference between an open honest discussion, sharing ideas and a blatant, often unfounded, confrontational or untruthful name calling that does nothing more than facilitate rude negativity. I prefer to form my own opinions, based on positivity, fruitful discussions and facts.  So yes….I have burned a few bridges, and will continue to do so.

"They Know"  Eric Bibb