life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Saturday, October 19, 2013

Happy Heart.....4 year Anniversary!

Every October while everyone else is promoting pink for breast cancer,
I celebrate RED.... for my heart!

Four years ago this week I began the most incredible journey of my life.  A massive heart attack, an aortic pump, a stent and a week in intensive cardiac care left me with significant left ventricle heart damage. Alive... it was an ugly life wake up call.

The first year I spent in denial, chasing cures, stem cell trials, and surgical options. I was willing to take any chances to fix my broken heart and get my life back. I finally gave up when the high risk thoracic surgeon at Shands said that the surgery could be life threatening. My arteries would most likely not hold the grafts, restarting my damaged heart after by-pass could be difficult leaving LVAD as my only option for heart function. The best possible outcome, was not worth the risk.

The second year I was alone, unfixable, angry and still in shock. I was not prepared for any of this and I refused to accept it. I was mad, felt sorry for myself, whined and cried a lot! (and as it turns out, I am really really good at bitching, whining and crying!)  Seven magnificent creative "VoG" women stood with me and held me up when I did not have the emotional or physical strength to do it on my own.

The third year I realized I was still here, still alive. I began creating and writing again. I realized I was wasting my precious time and aggressively began the war to take my life back. My creative heart led the charge.

And this, the fourth most glorious year,  I am learning how to embrace compromise and work around the physical difficulties. I can still love, laugh, create and celebrate my life.  

I cannot wait for my fifth year to begin.  I have so much more to do, to experience, to create, to live, to love and to learn.

Happy Anniversary to my most amazing heart, that against the odds continues to support me and the life I love every day....every day!
                                                                                  Now....I live every day! Now....I love every day!
     "Every Day" Dave Matthews Band

1 comment:

  1. Happy to be in your life... look at that magnificent heart! As a VOG, it is I who am honored to have been allowed in, to have shared and to have grown with you all. Thank you, Cheryl. Don't you think this calls for a celebration? :-)