life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Sunday, November 6, 2016


Even if it is not going to be alright!  I know I spend a great deal of time alone, and to be perfectly honest it is easier to be alone than to be around others that are uncomfortable with the situation I am in.  I want you to know, I understand why you are uncomfortable, hell….I am too.  I bounce unpredictably between needing to talk about it and wanting to ignore it.  I am not certain from day to day if I want empathetic understanding or a swift kick in the pants and a full glass….(or bottle)  of chilled wine. It is a horrible see-saw of ups and downs!  
Sometimes I just want to know I am alright.
"Distance"  Christina Perri

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