life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Wednesday, August 3, 2016

Energy saving mode

I am not sure who, if anyone sees when I “fall down” but it always feels like everyone is watching.  At times I think they are even laughing, pointing fingers and saying “I told you so”.  My art demons, become heart failure demons, whispering in my head….”Who do you think you are?  Did you really think you were better than everyone else and were not going experience physical heart failure like the rest of us? You were told, and you just ignored it, now….look at you?” Physical pain and overwhelming lethargy invite such ugly thoughts into my life.  This is not a decline….this is just my energy saving mode….It is so hot, everything was just so heavy, I just did too much and now I am paying for it.
"Sitting on the Dock of the Bay"  Ottis Redding

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