life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Thursday, August 11, 2016

By George I think she’s got it!

All is well in “sparky” land!  This is what is implanted in my chest….More like a “hockey puck” in my left boob!  But it is working!  Yesterday’s S-ICD data download went very well!  No “events” ….Pulse generator at 94% and NO adjustments!  My device is working just like it is supposed to!  Does not get any better than that as far as I am concerned!  Me and my  S-ICD are part of a clinical trial so all of this gets sent to some unknown muckity-mucks as well as my round house of docs and clinicians.  I will get the official report next week when all of “team” has a chance to look  over all of the downloaded info and decide……what’s next.  This has become a fairly routine (every 9 to 12 weeks) but the first time since this thing was implanted 7 months ago that there has not been some kind of glitch or problem…technical or medical….Woo-Hoo …By George I think she’s got it!
"Faith of the Heart" Rod Stewart

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