life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Monday, June 22, 2015

Got my ticket for the next ride!

And…..it is kind of exciting on one hand and scary as hell on the other.  So I am trying very hard not to get invested in any outcomes….just going on the next ride. 

The PET scan showed I have some “hibernating” heart muscle.  Officially that is tissue that is actually alive, but not functioning. A new thoracic surgeon going to look at the possibility of artery and valve replacement in an effort to get more blood into my heart, and maybe, just maybe that hibernating tissue might begin working again.  I know, I know, now that I see it in writing, it really does seem rather far fetched.  I am trying very hard not to get  excited about the possibility, or HOPE,  but it is hard not to.  I know how this works I have been on this ride before.
"Hold on My Heart" Phil Collins

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