life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Music is loading really slow lately...sorry...

Saturday, May 30, 2015

My best and favorite part...



Heart failure does not make me feel sick like you may think “sick” is, most of the time nothing hurts.  If you are going to have a long terminal disease this is the Cadillac on the used car lot.  I do not want anyone to think heart failure is easy.  It is not…it sucks a big one.  Sometimes it is really hard. I struggle to appear normal, it sucks up my awesome energy, and that is my best and favorite part about me!

"Don't Stop till You Get Enough"  Micheal Jackson

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