life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Sunday, May 3, 2015

m&m breakfast

"Lacking a coherent view of how people might live successfully all the way to their very end, we have allowed our fates to be controlled by the imperatives of medicine, technology, and strangers.”
Dr. Atul Gawande
“Being Mortal: Medicine and What Matters in the End”
It is going to be another week of information and decisions, decisions and even more decisions.  After a slew of new medicines, I see a new doctor (a.k.a stranger) with a new set of solutions technologyICD, internal cardiac defibrillator. CRAP.... I managed to hit all 3 of Dr. Gawande's imperatives in 2 weeks and it pretty much sucks! That is what I am thinking this morning with my peanut m&m’s.
"You and Your Heart "  Jack Johnson          
yes, I know this is not an appropriate breakfast
 but I do inappropriate so well!

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