life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Sunday, January 25, 2015


This really is the proverbial double edged sword!  I think to prevent my own embarrassment, pain and letting others assume what I am and am not capable of,  I just do not say anything.  I have been more open recently to tell others because if they are going to be around me for any length of time, they will figure it out, or think I am a total lazy slug.  My biggest fear is now and always has been, that once they know, they will see me as weaker, and unable to participate in life fully….that is the only thing I want to do right now…participate in life to the fullest extent my body will allow, not what I or others perceive my heart and body can or cannot do! Trapped!

"Secret"  Maroon 5

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