life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Friday, July 7, 2017

just because.....I love fireworks!

yep...it is a video...give it a minute to load....it is worth it!


We were going to go on an Evans family cruise to Cuba...but...you know what Trump did and then Ed (my awesome hospice nurse) said: "I am not telling you not to go....but you will be technically out of the country, we cannot help you"....I heard that loud and clear....no further explanation needed. Although I was reminded that my last excursion to NY museums left me with lungs full of fluid and an ugly round of pneumonia.  So...we are going on a family "stay-cation"!  Living in the "resort capital of the world" does have some advantages!  We are going to the Grand Cypress Resort for a long weekend with ALL of the kids and the Grands...but not just that....I have made arrangements to have a room that faces Disney...and for 3 nights  I have front row...up high...seats to their fireworks....I can hardly wait....silly I know...but oh how much fun I will have!

3 comments:

  1. Cheryl, I know i have said this before, but will say it again. You are my voice, and say the things I want to say and need to hear. So much of my life has been about trying hard to be the good one and to fit in, and I never have. I feel the things you say are meant for my ears, and want to thank you for saying them.

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  2. This place has given my heart an honest place to sing and a place to grieve! Thank you!

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  3. So proud of who you have become in this world 😍

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