life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Wednesday, July 5, 2017

He's baaaaack!

Oh, Thank you, Universe….My Ed is back!  I had to do 2 weeks with the “stand in” hospice nurses, while he was on vacation and I had no idea how much I adored him.  The other ones did the job ok….but not so much!  One was a day late, and one did not get my meds in on time and I spent the weekend halving the doses to make them last, figuring that half was better than none.  I did not plan on liking a male nurse, in fact, I really thought I would not like it at all, but he is amazing!  Not an alarmist, he is very calm and cool and he really works, coaches and keeps the meds at a level with me getting the best out of this life.  After the first 6 months with him,
I did not realize what a significant part of my life he has become and I am so happy that he is back!

"Baby, Now that I've Found You"  Foundations

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