life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Wednesday, December 7, 2016

Dancing and taking my power back!

Taking my power back....without permission!!! Well that is not entirely true…seemed like I needed about 42 other people’s permission, well that is not entirely  true either…but it sure did feel like it!  There was a late afternoon call from my regular docs office asking if I could come in as see them the next morning….I know….I know….when is the last time that happened….NEVER!  I figured if ever there was a sign from the Universe….this was it…I mean a doctor calling me for an appointment!  To make a long story short they are working with hospice to provide palliative care for me.  My heart has been singing, there have been tears of joy and I feel like for the first time in years, that I am being heard, that what I want matters, I finally have some control of my life….OMG it feels so good to take back my power over this disease, this heart, my life!  I am thrilled, there could be no better x-mas gift!  And I am happy dancing!!  Yes!
"Pata-Pata" Miriam Makeba

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