life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Monday, March 30, 2015

Running with it



My life and most of the people in it (except for a very few) have done a marvelous job of telling me, reminding me and chiding me for “not doing it right” the latest label that has been bestowed is “non-compliant”.  I was actually told that “I must learn to be compliant”.  When will any of them understand that it is my life, and I refuse to come to the end of it with tons of regrets and disappointments because I did it the way others wanted me to do it, compliant.  Why should I live their lives, chose their decisions, ignoring what my heart is screaming for,  I am taking non-compliant and running with it, but there is a big fat lump in my throat!....


  "Shine"  Jason Mraz

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