life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Monday, March 30, 2015

Running with it

My life and most of the people in it (except for a very few) have done a marvelous job of telling me, reminding me and chiding me for “not doing it right” the latest label that has been bestowed is “non-compliant”.  I was actually told that “I must learn to be compliant”.  When will any of them understand that it is my life, and I refuse to come to the end of it with tons of regrets and disappointments because I did it the way others wanted me to do it, compliant.  Why should I live their lives, chose their decisions, ignoring what my heart is screaming for,  I am taking non-compliant and running with it, but there is a big fat lump in my throat!....

  "Shine"  Jason Mraz

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