life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Wednesday, May 21, 2014


"Take off your mask, put down your guard
Don’t need a symbol on your chest
It’s all right for once to play
The damsel in distress
You’re gonna use up all your strength
Trying to be so strong
Don’t have to shoulder all the weight
Together we can take it on"
                       "Superhero"  Ross Lynch
...when the only person you have ever been able to rely on is yourself, when I have been my own superhero for such a very long time, it is hard to recognize and accept help.  I am trying, I am trying, I do not like being weak, and I just do not know how to accept help.  I have always been my own superhero! 

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