life, love,art. heart failure and assorted ramblings
Don't Talk Like That...
I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"
I know the people reading this blog, are most likely sick
and tired of hearing me “whine”…sorry…but from the very beginning writing has
been about getting unreasonable,
negative emotions out me while making room for new positive ones to arrive and
grow. It has indeed become a necessary
part of my healing and survival.
One of the things that has surprised me and perhaps been the
most difficult has been grief and loss.Not because I am the only one to experience it, but because there was no
good set of “emotional” tools on how to deal with it.It seems as a society we just do not want to
deal with it or talk about it.We seem
to find it easy to share with each other the “normal”, acceptable, traditional feelings
of grief, and the basic time period that it should take to mourn, but most
difficult to find anyone that is willing to fess up to the strange and unusual
ones.The feelings and actions that we “closet”
away so no one will suspect that we are not normal and healthy.
Give me love Give me love Give me peace on earth Give me light Give me life Keep me free from birth Give me hope Help me cope, with this heavy load Trying to, touch and reach you with Heart and soul Om m m m m m m m m m m m m m M m m my lord . . . Please take hold of my hand, that I might understand you Won't you please Oh won't you Give me love Give me love Give me peace on earth Give me light
“Life can be, and even likely will be, beautiful again.
But that is a life built alongside loss, informed by beauty and grace as much
as by devastation, not one that seeks to erase it. If we talk about recovery
from loss as a process of integration, of living alongside grief instead of
overcoming it, then we can begin to talk bout what might help you survive.” ~Megan Devine
…and even begin to laugh…Yesterday I went out to eat…at
night...at a table with strangers (Kobe’ one of those Japanese places where
they cook at the table…and the food is so good with my birthday sister and her
amazing husband) at the same table and I had a good time. Yes, there were a few
times I wanted to shrink away and disappear, it was uncomfortable at times, I
sat on the end, so if I needed to make a quick escape I could. But when those uncomfortable
times really began to “pinch”… (and the Ativan seemed to be wearing off) I just
focused on my breaths as I was taught.Normal
inhales…extended exhales, it just took a few to keep myself from slipping over
the edge into panic. I had a great dinner with awesome company, but a more fun
visit when I got back to the safety of my own little house.
“Feeling like you need to hold something close is perfectly
normal in grief. In previous posts in this series we've talked about different
things people often choose to keep that belonged to or somehow connect them
with their person. The brutal, intimate truth here is that what you really want
to hold is no longer here. So, whatever you can hold - whether it actually
belonged to them or not - you hold it as close, and often, and as long as you
need to.”~Megan Devine
Still working on “de-cluttering” and finally surrendering to
the fact that it is impossible to make a single decent cup of coffee in a 12-cup
coffee maker. I threw in the towel and bought myself a one cup coffee maker. It
works great, coffee tastes better, but still not as good as the coffee Skip
made every morning the past few years.It came time to get rid of or donate the old coffee maker, which I am
not sure is even “donatable” it is so old, paint peeling on the heating plate,
letters rubbed off after years of cleaning, and it has a small leak in the water
reservoir. I make the decision to just pitch it, and absolutely unexpectedly
broke down emotionally.That coffee pot
was a part of our morning routine and here I am throwing it away.Tears, guilt, and grief came out of nowhere
and took me out. I did eventually work through the melt-down and put the coffee
maker in the garbage can.Not because I
wanted to, but because I could feel him telling me how silly I was being and laughing
at me for being so attached to a coffee pot, reminding me to move forward....small steps.
“It is neither good nor bad. It’s just what is. Quite
simply, no matter how much I hate it, he died, and I did not. I can’t place a
qualifier on the way time has changed me.
Time will always have its way.
If you’re in that place where you feel instantly nauseous
even thinking about a life without this pain that is evidence of love, please
don’t worry. If you’re somewhere past those days, but life has not yet begun to
move forward with you, please don’t worry. Life will unfold, and with it, your
heart will find its own rhythm. It can’t be forced, and it also can’t be
stopped.”
~Megan Devine
And the question I ask every day is “How much time?”It does not appear to be the linear healing that I
know and understand.One day I am functioning (somewhat
normally) and the next I am a physical and emotional lump of human flesh. Yes, I know I have some of my own physical
issues, but I always handled them emotionally so much better than I do now.The thought of allowing my own broken heart
to find its own rhythm seems so impossible at times. I am learning how to trust me.
"No matter what happens next in your life, it will never be
adequate compensation. The life you lost can't come back. That loss can't be
regained.
"Recovery" in grief is not about moving on or
filling the void created by your loss. Recovery is about listening to your
wounds. Recovery is being honest about the state of your own devastation. It's
about cultivating patience, not the kind that implies waiting it out until you
return to normal, but patience in knowing that grief and loss will carve their
way through you, changing you. Making their own kind of beauty, in their own
ways." ~ Megan Devine
“Recovery” in my life has always been about pushing through,
no pain-no gain, take the anti-biotics-stay in bed-it will pass, have the
surgery-endure the expense/pain and you will recover, it will all be normal
again. Even with the slow degrading of life with heart failure, I have learned
to overcome and adjust to the “new normal” but in sudden traumatic loss the
reality of there will not be any kind of normal has been a difficult concept to
grab on to.I find that my worst days, loss,
anger, frustration, the feeling of failure are centered around my inability to get
back to “normal”. Learning how to incorporate grief into my life, accept the
loss and appreciate all that we had and I now have proven to be the mostNormal
as I knew it will never be again. I am learning how to cope with that.
“How can any of us who have lived intense grief, who know
far too well that the unusual and unlikely do in fact happen, all the time –
how do we live here? How do we keep showing up?
It’s not a question with an answer. It’s an edge even I
don’t like to walk. But it’s there, it’s constant. The knowledge that every
beautiful thing can disappear, and yet we make beauty anyway.
The knowledge that when we choose to love, we choose to
face death and grief and loss, again and again and again, just as much as we choose
the friendlier parts of love.
It’s all there, present and contained, in everything.
How do we do it? How do we continue to live here, in this
fragile, resilient existence, knowing what we know? How do we keep exploring,
growing, connecting, knowing that indeed, yes: it could happen again?
For me, these days, this means moving slowly, with
intention and gentleness for myself. It means being honest about my fears while
not letting those fears shove me into a tiny, unsatisfied life.”
~Megan Devine
I personally have decreased the size of my world, keeping it
small and manageable on a daily basis. I do not have to have it figured out,
right now.The fact that accepting love again from anyone
means that I have to be able of open myself to this kind of loss again. Love and loss are a part of life. I do not know if or when I will have the
strength to open up my heart to the size it used to be.But I am working on it!
I wonder sometimes what we mean when we say
"healing." In this culture, we tend to think of healing as being as
good as new, fixed, it's no longer bothering you. You've gone back to normal.
Everything is OK.
No. ~Megan
Devine
It means I am learning to integrate my grief into my
life.I am learning people that love me and really want to help just do not really understand that what they say is like stabbing
me over and over again.The worst thing
I have been told, many many times, but always with love and to help me accept the death, was that Skip would have never
been able to cope with life after I diedI know
that was meant to be comforting but what I heard is that I was responsible for
his death because I am terminal, that if
I was not sick he would not have died.My
head knows that is not what they meant, but it is was my heart heard.
Grief does not go away, I will never heal but
I will learn how to integrate the pain into my life. I will learn that I will not fit in a culture that avoids grief, wants me to heal, be fixed, get through it, be normal again. I never really fit into linear thinking anyway, so this should not come as a surprise.
It was my first Valentine’s Day in 45 years alone, it was
the first time in several years he was not with me for Nude Nite (at least for
one of the nights).As much as I loved
being around all of the artworks, laughed and was tickled that my work sold,
there was a what felt like a selfish feeling in my heart that he should be here
with me.I had marvelous friends and family
that drove me to and from each of the 3 nights and I am truly grateful, but it
wasn’t him. I am learning how to be alone, but I do not think I will ever stop feeling
the heartache of him not being here especially on these special days. So many days I feel like I am healing, and then there days it feels like yesterday.
"I Just Don't Think I will Ever Get Over You" Colin Hay
Nude Nite 2020 and both of them sold!I have only had one other Nude Nite “two-fer”
and it is so very exciting.I learned I
have a small 3” but there may be some rotten wood involved too, hole in my roof
and the Universe just provided the money to fix it without digging into my
savings.Following my heart and my
passion combined with a little pushing past what “I” think I am capable of is
always met with some kind of approval from the Universe.Valentine's day was another “first” without
Skip here.Although difficult, I was so
blessed to be surrounded by friends, family, art, and chocolates.I am learning the emotional tools to move
forward with my life and they seem to be working for me!
Monday morning, his candle is burning and we are celebrating our life together rather than reliving past trauma.
I am still learning, and clearly, I still screw up regularly.
This was a great visual and I need a reminder every now and again.Again, this is the first time I have only had
me to take care of, it is a new skill set!But what I have done is reach out to professionals that are giving me
the emotional “tools” to grieve when I need to, take small steps towards recovering,
do not feel guilty and choose situations that bring joy into my life.It seems simple.But those simple things are sometimes the
most difficult!
I have been so proud of myself, cleaning out closets,
cupboards, nooks,I may be the one person to have a
personal working relationship with the charity truck driver!And then today happened!
and crannies of all sorts and MY STUDIO…it still needs some
work!
I cannot find my drill or my hot glue gun anywhere!I started last night digging through all of
the obvious places but went to bed feeling surely a fresh rested set of eyes
in the morning and I would find them immediately! Did not happen…tore up the
studio again looking everywhere and nothing!Where ever they are, I bet they are together and at this moment the
possibility of them accidentally getting into the charity truck pile is
becoming more and more the obvious…damn it!
It is Monday again, and I lit a candle in honor of you and
our love, and it gives you a physical presence and less of the horror of the memory
of that morning but a real manifestation of the love and light we had. And
for the first time ever, in addition to the trauma of that day, I realized how
much strength and grace it took to navigate that morning, to do what needed to
be done even though it was the most painful thing I have ever experienced.
I am learning how much strength I do have. I am also learning that I no longer need to spend my limited resources and emotional strength to struggle through negative situations I cannot change.I do understand that I need to acknowledge the pain and honor the love.But I am realizing that when difficult situations arise again, I can say
no and with a fraction of the effort I can avoid the overwhelming pain that I know will come. I am at
the point in my life that I have loved dearly and long but I also know it can change in a moment.Forgiving myself is difficult, but once it begins it opens my heart and begins to relieve small parts of the
pain. Letting go and forgetting is the hardest part of the pain, but perhaps the most important one. Learning how to say no and refusing to get caught up in the repetitive historical emotional negative loops that I have no control over is new but it is so necessary for me to
live the rest of my life in love and peace. I am saying what I need to say and sometimes "NO" (with love) is a full sentence.
Pieces and parts, ideas percolating but nothing specific has
arrived, yet!Sculpture really is a new
medium for me…Abstract sculpture is taking even a step further.When I began my career in art I began with my
love of abstract, but it did not sell…not at all.If I wanted to continue, I had to generate an
income so I reached back into realism, but with my own twist. It worked, it sold
and, sold well. Skip & I spent years on the outdoor art show circuit. We had
a blast and made money; it is was all I had hoped for.
Now I find myself reaching back into my first attraction,
but this time in 3 dimensions.Just
going to keep working trusting the inspiration will come!
I am eternally grateful to all that have offered their love,
sympathy, advice, and concern. But, I have felt like there must be something
horribly wrong with me that this incredible outpouring of love and support did
not help me get through the grief. The
guilt and the emotional self-flagellation began when I could not feel
better, I thought love could fix anything….everything!
It now occurs to me, that I have never been the regular one.
I have done in life all that was
expected of me, but it felt like it was more of a struggle for me than
most. My life stretched out, reveled in
the creative, admired the different, and
celebrated all that succeeded beyond normal.
I do truly appreciate all of the love I have received, but perhaps some
of this guilt is just I am not that tame!
Yep! I am still here and in my own small way, celebrating my own tenacity... I am going to do it again!Nude Nite 2020! The exhibition opens Thur. Feb 13th!
Tickets on line!
This came across my Facebook page from a friend and I
immediately related to it! It was like suddenly; it is not just me and there is
a word for it!! I was raised Christian (more specifically Episcopalian) but it
really was more about “showing up” and being seen.I never really got the spiritual relationship
to Jesus or God although I did love the ritual!Coming from a small town, my exposure to different people and religion
was nil!As I grew up I was exposed to more and
more nationalities, religions, and races. I got to know them as people and loved so many
of their wonderfully different histories and beliefs.And for the most part, those religions were full
of the same kind of magical laden fantastically unrealistic stories, but the root of the
stories was forgiveness, taking care of one another, and sharing they all had love at the center! In a time
where we all point fingers and find the worst to blame in other religions (including
me), I prefer that none of them become political beings with the intent of
making everyone feel and believe what they do or chastise others for being different. It feels like the bond of love should
to be bigger than our differences.
Another month passes, and my heart still aches for you.I am still learning how to exist without you
in my life and it is the most difficult thing I have ever had to do.I miss you more than I have words to explain
but your bell over my bed still rings and I know that in some unexplainable way
that you are still here with me. I love you!
"Have I Told You Lately that I Love You" Van Morrison Grief is already a lonely experience. It can feel like you lost the entire world right along with the person who died. We all need a place where we can tell the truth about how hard this is. We all need a place where we can share what's really going on, without feeling corrected or talked out of anything.
I have ranted about being agnostic occasionally, I dislike
all organized religion intensely, I do not know what happens after we die (and
am certain no one else knows for sure either) …HOWEVER…I have never raised an
objection to Jesus, Buddha, Allah, and others. They are not the institutions we
see now. In their beginnings, they all
spoke of love, forgiveness, honor, sharing, and people followed them for that
reason. Then people with other
intentions watched how these holy men gathered people’s loyalty and gluttonous men
took their messages called it religion and screwed them into insatiable financial
and political greed.
So, when this came across my Facebook Page, I was so
encouraged, it is not just me!
"Do not turn your anger in on yourself. This is what you are
doing when you think you aren’t doing this right, that you’re the one messing
up your continued connection, that you should be better at this. Notice you’re
angry. Call it that. Name it for what it is, don’t turn it on yourself. The
answer to constriction and anger is to name it, not beat on yourself.
Anger, allowed expression, is simply energy. It's a
response. Allowed expression, it becomes a fierce, protective love--for
yourself, for the one you've lost, and in some cases, gives you the energy to
face what is yours to face. Shown respect and given room, anger tells a story
of love and connection and longing for what is lost. There is nothing wrong
with that.
All of this is to say that your anger surrounding your loss
is welcome. It's healthy. It's not something to rush through so you can be more
"evolved" or acceptable to the people around you. Find ways to give
your sense of injustice and anger a voice. When you can say you're angry,
without someone trying to clean it up or rush you through it, it doesn't have
to twist back on itself."
~Megan Devine
I have found that cleaning out closets, cupboards, under beds
is allowing some of this anger to feed back into some positive movement.There is an additional frustration when this
body refuses to work like I need it to.It feels so wrong and then I am guilty of being angry with him, so I
appreciate so much that Megan Devine can explain that it is not just me, this
as a way to tell my story of love and connection for what I have lost.And yes, there were times Skip & I were
angry with each other, but we still loved each other. I have to learn how to
forgive him for dying and leaving me and forgive myself for being angry that I
am alone and having those overwhelming feelings of selfish guilt.
I was told that time will heal the pain.They were wrong…every Monday morning I am
overcome again and again with horror, disbelief, shock and unbearable memories
in the ER.Monday is an arrow that pierces
my heart and my life every week.
In case you have been wondering...this is the person (Megan Devine) that has been so helpful in helping me with my own grief...She is not just a psychotherapist but also a sister widow of an unexpected and sudden death. She seems to understand and have the ability to articulate this kind of loss in a way that resonates with me...more than anyone or anything else has.
'Get back to life. Have you heard that phrase from people outside of your grief? Even people who truly love and care about you might be pushing you to get back out in to the world, live your life. They may even tell you you have so much to live for.
The thing is, the people who often say these things actually do have a life to go back to. They may be deeply impacted by the death of the one you love, but if their family is intact, if there is no gaping hole in their daily life, they just aren’t going to be affected the same way you are.
I don’t necessarily mean that you had to live with the person you’ve lost in order to be the most impacted by their death. Not at all.
What I mean is that, for many of us, the people we’ve lost were such an integral part of every single day, every single facet of our lives, there really is no “normal life” without them.
There is no part of our universe, our daily lived existence, that they didn’t touch.
There truly is no life to “get back to.”
Eventually, perhaps, new things will begin to grow around the crater that has erupted in the center of your life. The hole itself will remain. I don’t mean that as a downer, either. I mean that a central loss, a loss that shifts the axis of the universe, is not something that simply shrinks over time.
Getting back to life can't always happen inside grief. Instead, we can come to ourselves, to each other, with kindness and respect for what cannot be resumed.
We – you, me, all of us – will not return to the life that was. That’s simply not possible. What we can do is bow to the damaged parts, the holes blown in our lives. We can wonder what parts of ourselves survived the blast. We can come to ourselves, and our irrevocably changed worlds, with kindness and respect.'
Just a thought!Recent
changes in my life have made me think a lot about religion.It has been a long time since I have
practiced or believed in traditional religion, while still holding on to the theory
that there is something bigger and grander than any of us are truly capable of
understanding.When I see things like this,
I am reassured that it is ok that I do not understand and it does not make me a
better or a worse person. Perhaps, just
more open-minded about the possibilities.