life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Tuesday, June 18, 2019

More friggen’ equipment….Is it being prepared or is it just plain fear?


Another summer storm/hurricane season has arrived and I found myself reassessing the equipment I need to live well.  Becoming more and more dependent on an O2 concentrator and a nebulizer to help me deal with fluid in my lungs has made the need for self-contained power generation not just a convenience but more of a need….or am I just afraid of trying to survive without them?  

The last storm that came close (Irma) left us without power for a little more than a week, I learned the hard way how critical it was! And 2 years later, the symptoms and struggles of heart failure have only multiplied. 

The past few weeks we have installed a large (but portable) generator and a portable AC.  The generator will keep our fridge working, the nice size portable room AC, O2 concentrator, nebulizer and several other things running in our house.  What was beginning to feel like panic at the oncoming summer storm season is now feeling a bit better.  

But then I begin to wonder how much of this is a wise investment and preparation and how much of it is just plain succumbing to fear.  The further I move down this road, the more I realize that extraordinary independence and significant self-reliance is my guiding force!
"Heal Yourself"  Ruthie Foster

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