life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Music is loading really slow lately...sorry...

Tuesday, May 30, 2017

By the way…none of this is covered in the handbook

And this is just what it feels like….a friggen’ monster connected to a can of gas (or machine when at home)!  It just sucks to have those “hickies” poked up my nose.  I know you see them…some will mention it and that makes me uncomfortable….others will not, but I see the disbelief (or repulsion) in your face and that makes me uncomfortable too! So it really does not matter, I am going to just have to get used to being uncomfortable if I want to go outside, or teach, or show my work, or go on vacation or do any of the things I want to keep doing….None of this is for sissies….physically or emotionally.  By the way…none of this is covered in the handbook.

"Beautiful" India Arie

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