life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Wednesday, January 4, 2017

I am the lucky one!



Living and celebrating!  I cannot remember who said this and on top of that, I am going to paraphrase poorly, but what keeps ringing in heart, is “you do not really figure out how to live, until you realize you are dying”.  And here is the real ugly part, by the time you figure this out; there will most likely be gross physical, mental or financial limitations.

 I am the lucky one!  These things have applied to me however I am still functioning, frustratingly slow and overwhelmingly tired, but wonderfully with little physical pain.  When I do function…. it is good.  I have my creativity, received unbelievable financial gift and  the most amazing hospice team…..
I AM LIVING!


"Walk the Walk"  Eric Bibb

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