life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Thursday, March 23, 2017

Too good to be true.....

Every now and again I see something that just seems too good to be true, but in moments of sheer desperation I am willing to try anything!  As I continued to monitor the weather for the upcoming NY City Museum trip it became clear that the lovely early spring weather I was hoping for has degraded to a lingering ugly sloppy wet winter.  I am a FL girl….really..I mean really!  I do not nor have I ever owned boots, or any other “serious” winter clothes, but what I realized this week is that winter clothes regardless of how serious they are, take a hell of a lot more room in a suitcase…AUGHHHHH!!!!! I found these packing bags on Amazon.  Bags that seemed to be inspired by the “seal-a-meal” or (because I cannot remember the official name) the “suck-and-store” bags for blankets and pillows that suck all of the air out and shrink them up!  I thought “OMG…please let this work”.  Halleluiah-Halleluiah…it works!  A puffy jacket that would normally take up half the suitcase now only takes up a fraction of the space!  The packed bags with the air sucked put look slightly disgusting, and I am sure the wrinkles may be seriously smashed in there, but that is a problem for another time!  For right now…I will call it “creatively organized” and do the happy dance.  I can get on the plane without paying more for baggage!
"Time of Your Life"  OrtoPilot

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