life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Sunday, March 5, 2017

BUT…..I get to keep doing what I love!

This is a serious love-hate relationship!  Hate having to carry this thing around, Hate having tubes poked up my nose, Hate that for the first time since I have had heart failure that it is obvious ( I could pull off no one knowing before) and just Hate that it is an open obvious reminder that this is beginning to go downhill, and a constant reminder that this disease is marching on with or without my consent.  But I love that it gives me the ability to keep going, and I can still participate (albeit from a rather “edited” point of view).  In the past few weeks I have been able to deliver and participate in Nude Nite, went to St. Pete to see the Frida Kahlo exhibit, delivered art to the Osceloa Art Center for the “Creativa” Exhibit and screwed up my courage enough to continue mentoring at the Leesburg Art Festival next weekend. I love it and I hate it!  BUT…..I get to keep doing what I love!
"Save Myself"  Ed Sheeran

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