life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Thursday, March 16, 2017

The Cheetos are gone....

When I have so so much to be incredibly grateful for, I still continue to feel a sense of loss that will in the least expected moments over take me….and I find myself quietly and embarrassingly crying to myself.  Fear and finances kept me from so much that I really wanted to do with my life and now there is a whole other layer of fear.  Experiencing a body that does not physically support me makes fear and finances seem so silly and small.  I really have not appreciated the gifts I have been given. I should have done so much more!

"Details in the Fabric"  Jason Mraz

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