I have secrets

I always thought that, a great life was a life that was free, open and no secrets.  I have no idea where that came from….but it has always been a part of my thinking... but now, I do not think it is necessarily so. 

As I grow older, I am learning that not all secrets are bad things. There are parts of me that are the best and strongest when they are kept on my insides, not shared or exposed to the world for judgment, comment and scrutiny. My secrets are what make me, ME!  I do not need other people to agree with me, support me or understand me.  I hold on dearly to the feelings and the secrets that make my heart sing.  I am not ready to risk others not liking them.

"Secret"  Maroon 5

My best and favorite part...

Heart failure does not make me feel sick like you may think “sick” is, most of the time nothing hurts.  If you are going to have a long terminal disease this is the Cadillac on the used car lot.  I do not want anyone to think heart failure is easy.  It is not…it sucks a big one.  Sometimes it is really hard. I struggle to appear normal, it sucks up my awesome energy, and that is my best and favorite part about me!

"Don't Stop till You Get Enough"  Micheal Jackson

"Is this the prize for learning how not to cry?"

Summoning up the brave today….  I believe all of the things I (we ) have to endure are in our lives for a reason.  We have lessons to learn!  With a bunch of new (or new for me) cardiac procedures, I think the lesson the universe wants me to learn is how to be really brave, I mean really really, kick ass brave.  I know I should say ...."move aside hurt and fear, you are in the the way"....But I want to say “REALLY” more of this??

"Doctor My Eyes"  Jackson Browne
"is this the prize for learning how not to cry?"

These Incredible Artists!

Sometimes, it is not about how much you put in your pocket, but how much ‘they’ put into your life.  How lucky I am to have had the opportunity to have had these incredible artists in my life.  Thank you I am so grateful!

  "I Can See Clearly Now"  Johnny Nash




The end of every Artist's Way Class is a whirlwind of mixed emotions! Celebration at the completion of class gets rolled up in the realization that we have finished the class. The thought of not spending Wednesday evenings with these amazing creatives makes me sad, but I am incredibly, wonderfuly, grateful that everyone of you have come into my life....Thank you for going on this journey with me and thank you all so kindly for my gift. I have been truly deeply touched and count everyone of you as an amazing blessing....You all taught me so much!

"iT" works for me

This is one of those holy crap “I get it” statements.  However I always “get it” right AFTER I have done it!  What I really need is someone or something to convince me not to be scared BEFORE I do it!  I want to do so much more! And then….I suspect it mostly has to do with what “it” is! 

I want to experience everything but I often feel like I am scared of everything, so it is easy to understand why this quote is working for me!

"Honkey Tonk Women"  Rolling Stones

The butterfly is not here yet!

I am certain staying busy doing what I love has been the magic formula that has kept me going well past and much further than the doctors felt I should.  Of course nothing makes me happier than to prove them wrong!  This next stage is going to be a bit trickier.  I have to find the way to continue practicing radical creativity! The butterfly is not here yet!

    

              "Shaking the Tree"  Peter Gabriel

Strength in being seen....

Yes, I am afraid of what is just beyond the ache,

Yes, I am afraid of being seen

....who and what I really am.

"All We Are"  Matt Nathanson

BE "?#(/!#&" BRAVE

And believe me….very few are going to encourage you being brave!

But hold your ground; most of them are NOT interested in what is good for you and your life.

They-NOT you,  prosper financially and emotionally when you give in and are who and what they want you to be.

"You're the Only Thing in Your Way" Cloud Cult

Working on being notorious!

Rumi seems to know me.  I did not think I had intentionally done any of these things, but when I look at the list, it seems as though I have.  Well….everything but…. “live where I fear to live”.  From a strictly physical point of view, I have been in the same community and the same house for 38 years.  Not a special community, not an remarkable house, but the years of growing family, kind friends, celebrated successes and colossal failures have made it a comfortable place, a home, and I suspect “it” is what gives me the courage  to do all of the other things. But I need to really work a little harder on being notorious!


"Belly Belly Nice"  Dave Matthews Band

and...I get away with it

I bid on and won my own hand painted kite at the Artist’s Way celebration of creativity silent auction.  I cannot wait to get to the beach and fly it. This will be putting my work into the world in a completely different way.  I cannot imagine the experience!  Flying a kite is already one of my favorite things, seeing my stripes, hearts and swirls in the sky will be crazy fun!  I love playing like this, (and so many other things) and I will take my grandsons with me, just so people think I am not quite as weird,

You all think I am just being a good Nana….

Hell NO…I am playing having so much fun!  The kids are my cover....and I get away with it!
"I just want to fly,
Put your arms around me baby, 
Spread your arms and fly"

                  "Fly"  Sugar Ray

Strength & energy hiding in the darkness

And the part of the story that is the hardest is being totally aware of what parts of myself are not working like they used to.  Frustration does not begin to describe the loss. The darkness it creates can be overwhelming.

And then....this made me realize that there could be a ton of strength and energy hiding in that emotional “darkness”  I need to let go of the fear of the dark, go in there and find the tenderness,the strength, the energy that is waiting for me.

"Here Comes the Sun"  The Beatles

it's a mouthful...but so true...

Every once in a while it is so great to know that what I feel is not bat shit crazy!  "a study focusing on participants in a hands-on art workshop found that making art greatly improved their 'psychological resilience' — which helped them resist the effects of stress and actually made them feel happier — while increasing 'functional connectivity' between many areas of the brain. While fully engaged in the act of creation, the participants were able to reach a powerful mental and bodily state the study refers to as 'flow,' which engaged both cognitive and motor skills. Plus, another 2014 study revealed that the act of drawing actually helps develop gray matter density in the brain."


"Heal Yourself"  Ruthie Foster

Fair Warning!

There is such a fine line between expressing my feelings, saying what I feel needs to be said and hurting someone else’s feelings. Often, I say nothing out of fear or an attack of ignorance.  I am the one that comes up with the perfect intelligent response a half of an hour AFTER the conversation has ended.  I was raised on “If you cannot say something nice, do not say anything at all”,  “keep it locked up inside don't talk about it, talk about the weather” and “Better to be thought a fool than to open your mouth and remove all doubt”.

I have given up trying to figure this out! I think it would be wise for everyone to plan on my being inappropriate because I suspect I will be saying a lot more about how I feel!  FAIR WARNING!

 .
  "So Much to Say"  Dave Matthews Band

I am not good at communicating this kind of stuff and I do not have to do it over and over again and besides, I just plain hate doing it. So writing seems to be the easy way through it.

The past few months have been difficult. A recent series of tests have revealed both heart valves are weakening, the stent that was placed in that miraculous collateral artery that kept me alive several years ago has failed and that artery has collapsed just like the 2 other major arteries did years ago. My Ejection fraction (the amount of blood my heart can pump) has dropped to 20%, and EKG’s continue to degrade. After many tests and consultations confirming these conditions, I was offered the option of heart transplant and/or LVAD (left ventricular assist device) to prolong my life.

I have spent a good amount of time with my cardiologist these past few weeks, she is a wonderful young woman, specializing in women’s heart disease that has been taking care of me and my heart for over a year now and I like her very much. We have talked at length about recent test results and the pros and cons of my choices. I have with her blessing and agreement decided to discontinue the testing regiment that would establish cardiac viability and my placement on the transplant list. I have opted to not have a transplant. I have however elected to continue to enjoy the outrageously wonderful quality of life I now have, for as long as I can without risking an extremely dangerous surgery, organ rejection and possible damage to my already compromised kidneys from anti-rejection drugs. The waiting list is long and I am in the lowest percentage of heart recipients. Instead of compromising my extraordinary “now”, I have been recommended to have an ICD (Internal cardiac defibrillator) implanted in my chest which will automatically monitor and/or shock my heart when it needs it to prevent sudden cardiac death and give me the best opportunity to have a spectacular NOW! I am seeing an electrophysiologist (I know, what a mouthful) for more testing and to schedule that surgical procedure in the near future.

The rest of my cardiac support will be managed with medication. The new meds have already made an amazing and wonderful difference in pain management and my day to day quality of life. We will continue to manage and support symptoms and declining function as the situations arrive with new medicines.

I need each of you to understand how magnificent I truly am. I am not giving up! I am blessed with the fantastic opportunity of making intelligent well researched decisions about my own quality of life with wonderful medical support. I am in a very good and loving place spiritually and emotionally and I really do not need anything, but your happy loving thoughts! This is simply another part of the disease I have lived with for over 5 years, it is just getting a little harder now. I plan on continuing to teach when I can, create art, laugh, love and enjoy this amazing life for much longer!

Dancing in my underpants!

Van Door broken again….

dancing in my underpants.

Hospital blood tests…

dancing in my underpants.

Cardiologist today…

dancing in my underpants.

Blue sky-dear friend home from Mexico-another has a phone-closet is clean- unexpected visit from my son, pizza and and 50 cent beer tonight and I am incredibly HAPPY dancing in my underpants! Some times I forget to celebrate the good things, but what would

happen if I danced in my underpants through
the bad stuff, too????  Holy Crap, stand back!

"All Right Now"  Free

Circles

Circles are unbroken infinite lines without beginning, end or direction, ancient symbols of eternal love.

My circles are endless and unmeasurable. I can attempt to measure the area or circumference of a circle by way of the arithmetic (rational) function Pi.  However Pi ( π ) will never produce a whole rational number, only an irrational number whose final decimal place can never be resolved. Regardless of how close I come to getting an exact measurement of a circle or my life, I can never fully resolve it.

My bracelets, unbroken circles without beginning or end are my constant reminder that I cannot resolve or understand the infinite.  Each circle has been given to me by my dear friend or family member. Every one of them is more dear to me than I can say and I never take any of them off.  

"You Have Lived"  Don McClean         

Simply Scrumptious Saturday

It has been such a long time since I have given myself permission to screw around.  Oh how I have missed it, and oh how I needed it!  And.... I am really good at it!

One of my favorite, comfortable, familiar places to do that is in Sanford on Saturday morning.  The farmers market, the second hand book store, the folk art gallery and lunch are a kick-butt party for my senses and my spirit.  It was a marvelous day, and guess what came home with me?  Tomorrow it begins again…the poking,  the doctors, the tests…the ugly medical shit that invades my world.

"Closer I am to Fine"  Indigo Girls

flap...flap...flap...

flap...flap...flap...flap...flap...flap...

"Blowing in the Wind"  Peter, Paul & Mary

Reaching...reaching...reaching for more...

Do you know how it feels to need to reach for or to grab on to something, but not know what that is?

Is wanting “more” part of the human condition that propels us to achieve our best selves or is it what keeps us from appreciating what we have and living in gratitude?

I want to love, dance, sing, travel, play and create make until I just cannot physically do it anymore.  Do not tell me it’s ok to slow down and rest because it is not ok!

Reaching….reaching…reaching for more!

"Someday"  Sugar Ray

Love Everyday

The easiest to say is the hardest to do.

All of the answers to all of the hardest questions can be found in love, and for some reason it is almost always the last place we will look.
Easy to say does not mean easy to do.

Love through the anger.

Love through the grief.

Love through the heartache.

"Everyday"  Dave Matthews Band

Flow Chart Mentality...Holy Crap!

Twice in the past couple of weeks I have had the unusual experience of  medical people using the phrase “You are on the left (or right) side of the flow chart”.  For you LEFT BRAINERS this may make perfect sense, but those of us with RIGHT BRAIN mentality it is confusing as hell!  When I was told we are working down the RIGHT side of the flow chart, I took it to mean RIGHT, GOOD, CORRECT, APPROPRIATE….then in a conversation with someone else, they mentioned they were working down the LEFT side of the flow chart and this was a great situation….WHAT?  I was confused, looked up a flow chart, and this is what I found….HOLY CRAP!  "What we have here is a failure to communicate"

"Be OK"  Ingrid Michaelson