life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Thursday, April 20, 2017

Medical code words....

For lack of serious medical training (and quite frankly I really do not need to understand every single micro medical reason) this is basically what is happening now, according to yesterday’s nurse visit, I have pulmonary edema, which is the medical code word for fluid in my lungs. Not sure if this pic is an accurate representation of the quantity of fluid, but I am a “show me a picture” kind of gal….however, I DO NOT want to have the medical school gross pictures….this one works just fine for me and my imagination!  There is a fine line between understanding and just plain knowing too much.  The good news is that with the nebulizer and by doubling (again) the lasix we ought to be able to manage this, feel better and have more energy pretty soon!
That and pee more than I already do now…and that really sucks!
"Doctor My Eyes"  Jackson Browne

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