life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Tuesday, December 30, 2014

That is my job and I want to be really good at it!

Every doctor I have seen is very different but they each have had lessons to teach me.

The most important lesson I have learned is this. It was a hard lesson and it hurt my feelings but the reality is doctors and nurses do not know me or “care” about the quality of my life, they are not my salvation or my friends.

Their “care” is being paid for. Their job is to investigate and interpret my physical functions and recommend meds and treatments. I am no more or less than a paying customer, just like a customer of the phone company. I wish it were different but in my experience it is not.

I had to change my thought process. I am the only one that cares about and is responsible for me. I am the only one that knows how I feel and/or how I want to feel. The doctors and nurses are my hired professionals; my physical advisers that can help me achieve the life I want to lead.  They are not the final decision makers.

The most important part for me about living with heart failure is to continue to create art, facilitating creativity in others, spending time and life with friends, family, living, laughing and loving. I cannot place my amazing life in the hands of doctors/nurses that do not really know or care about the quality of my life…..that is my job and I want to be really good at it!
"Blackbird"  The Beatles

No comments:

Post a Comment