life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Monday, May 14, 2012


Just finished another semester,  the painted baby grand piano is finished and has had an exciting very successful unveiling with jazz singer Miss Jacqueline Jones, and the grand children have come and gone. 

The last 2 weeks were brutally busy!
What most people do not understand, and what no one tells you…. is how much unbridled energy comes from the doing! (NOT conserving my energy!)  Yes- it is hard….Yes-there were 4 times (that I will admit to) breaking down and crying that I just could not do this anymore, Yes-there were frustrating  times that I fell out and slept for hours in the middle of the day but the biggest YES of all….. I did it anyway!

Looking forward to summer and all of the exciting things I will be doing NEXT!

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