life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Thursday, July 21, 2011


For someone that felt dependable when it came to keeping commitments (one of the few things I felt I was really good at!) this sudden uncertainty for me to make good on all of my plans is a source of tremendous anxiety and stress. Although I rarely feel 100%, I do, like most chronically sick people, have days that I function better than others. I just cannot predict what days those will be. As a result I end up feeling absolutely miserable when I make plans for a certain day and am just unable to follow through. Uncertainty sucks!

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