life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Wednesday, July 6, 2011

The Official List of “I Hate it Whens”…..2.0

Recent experiences have provoked another obnoxious list of experiences brought about by an outrageous, unreliable, dysfunctional, uncaring medical industry!

I hate it when…
I have to wait more than a year for test results to migrate from one doctor’s office to another. The offices are less than 20 miles apart.

I hate it when…
Those tests finally arrive and they suspect some are wrong, some are still missing information, and others detect a problem no one knew was there.

I hate it when…
I have to make an appointment to see a brand new (non-specialist) Primary Care Physician to get an approval to see the specialist I have been going to for over a year.

I hate it when…
The doctor’s waiting room has a piece of paper taped to the wall that says “This office WILL NOT give test results on the phone. It is the patient’s responsiblity to call the office and make an appointment to discuss test results.” Then the doctor writes orders to repeat and conduct 4 more ridiculous unnecessary tests. I have an extremely urgent need to post my own piece of paper on his waiting room wall!

I hate it when…

medicine makes me sick, I can do that all by myself, thank you. I do not need help!

I hate it when…
doctors, nurses etc. do not give a rat’s rump what my name is. Even the lousy phone company customer service rep will ask me my name.

I hate it when…
I appreciate anyone in the medical field that will just pretend to care as much about my heart as they do about my financial status.

I hate it when…
I am tired all of the time, it really sucks!

I liked it so much better when I did not go see doctors!
Why am I doing this again?

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