So, it has been a long time since I
have blogged about my heart or anything else for that matter. I had so many ugly things going on in my life that my blog would be nothing more than a magnifying glass
focusing on all of my failures. But I am getting back in the habit…and
liking it!
I want to be as energetic as I can be,
while I can be. I want to squeeze out every bit of fun, functioning
laughing, creating and living. I
have seen people that have wasted
time and money trying to live longer. They end up here slumped over in a wheel
chair sitting for hours. I will not do that. Ed, my most favorite ever hospice nurse taught
me that.
Against everything I thought I believed
in, I have agreed with my cardiologist to do one more
set of tests to see how much and where the damage has progressed. There are now some crappy thigs happening that are screwing
up my ability to do what I want to do.
There are some new meds that might help
me if I am not too broken now. I have outlasted most of the forecasted
mortality statistics already. For
that reason I have agreed to the tests but not without first wagging my finger at
the cardiologist and sternly announcing meds are OK but I will not agree to any
more surgery. He laughed and said that I am such a lousy risk that surgery
would not even be considered. Such good news!!! I have had more than my share
of surgery and gross invasive tests I cannot do that anymore! I am so thrilled to have a real live cardiologist
that really understands palliative care.
Now, it would be way too easy to get all
the tests done in 3 or 4 days but NO it
is going to be 4 weeks to get them all scheduled and done. So stay tuned on
the next chapter of this saga due to arrive July 25th when all of
the results are in. Good thing I was not in a hurry, but when Medicare is
paying for everything….I can wait!
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