life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Monday, June 11, 2018

Who knew it was so hard on the "HULK"

and….just about the time I am doing the happy dance …finally kicking the ugly respiratory, lungs full of crud and fluid….they cut back my steroids to the normal dose. ….taking away my “HULK” and the dance comes to an end!!!  With the extra steroids, I feel great, I can take on the world, and kick-butt at the same time. This is the second time (well I do take them all of the time now) that I needed extra help and they doubled the dose for a week…aka THE HULK DOSAGE.  I have taken the “HULK” dose and then had to come off of them before….The first time was unexpectedly noticeable and I was not a happy camper but it was not horrible. This time it was pure-D - Holy Crap horrible.   Saturday I was just out in la-la land somewhere, yesterday I woke up with my eyes swollen shut and an upset stomach and just plain shakey…it is Monday and so far everything is open and working….Hope I am done with that!  Phew!  Who knew “David Bannon” had it so rough!
"Strong"  One Direction

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