life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Tuesday, March 16, 2010

Roller Coaster Ride!

And it goes on…..spending days, weeks waiting to get going with the stem cell research, finally the phone call I have been waiting for comes from the Shands Cardio-pulmonary office, but NOT with the info to start the stem cell research that I have been waiting for.
Another ride is starting. The thoracic surgeons reviewed the film and now I am waiting for a surgeon to call. When I looked him up on the internet, he is a high-risk cardiac surgeon that participates in a lot of clinical trials and research. Not sure where I am headed, another clinical trial, surgical or just a high-risk surgical procedure. Either way it feels like a brand new ride and I waiting on another phone call.

I never really thought much about how much control each of us has over our own lives, I always felt like I was in charge. I am learning that I was wrong.

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