life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


Music is loading really slow lately...sorry...

Saturday, March 13, 2010

No News... is Good News???

That is what they say....So who the hell is "they"?

Although on the outside my friends and family constantly comment on how well I am "doing" on the inside I am screaming at the top of my lungs. Screaming for all I am worth. Half of me dying to be heard, the other half scared I will be heard.

I finally screwed up the courage to email Shands to check on my status in the stem cell research. They replied quickly but, there was no information in the answer. "The surgeons are still looking at the films, no official report yet, I expect it sometime this week" That was on Monday today is Saturday, the films they are referring to were made 21 days ago.

Don't they understand that this is my life? Don't they understand this is important?

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