life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Saturday, March 13, 2010

No News... is Good News???

That is what they say....So who the hell is "they"?

Although on the outside my friends and family constantly comment on how well I am "doing" on the inside I am screaming at the top of my lungs. Screaming for all I am worth. Half of me dying to be heard, the other half scared I will be heard.

I finally screwed up the courage to email Shands to check on my status in the stem cell research. They replied quickly but, there was no information in the answer. "The surgeons are still looking at the films, no official report yet, I expect it sometime this week" That was on Monday today is Saturday, the films they are referring to were made 21 days ago.

Don't they understand that this is my life? Don't they understand this is important?

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