life, love,art. heart failure and assorted ramblings
Don't Talk Like That...
I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"
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Thursday, April 23, 2020
What I can do!
The treadmill is gone.
As my energy wanes, I chose to spend what I have on being productive,
independent, and creative things. The
treadmill had become a big physical reminder of what I could not do
anymore. However, I will sing its
praises as I am certain the hours I spent on it have had a great deal to do
with my endurance now! In its place is
this bench that I stained to match (well kind of match, close gets the cigar in
my house) Skip’s grandmother Evans wardrobe and the coffee table Skip and I
made. Feels like a uniting of the room
and the generations…The pillows have been around for a while, but I did hand
paint them and that gets a little color and balance to that side of the room…And
I did it myself…well, the staining and the pillows…now it is a reminder of what
I can do instead of a big ugly symbol of what I cannot do.
"Shine On" Eric Bibb
Monday, April 20, 2020
Fishbowl
Yep…It’s Monday…ugh…and It has been a week and then some
since I have posted. It was a weird week! Two first times in one week. Holidays-birthdays without him and his
birthday around the corner. There is a
fine balance of staying in the “now” and getting pulled back into the past and
the “knowing” how this special day will happen.
I get thrown off on those days. These are the days that grieving
typically re-emerges and becomes almost as strong and those initial days. These
are the days that home becomes my sanctuary, but with the covid 19 stay at home
order, sanctuary begins to feel a bit like a fishbowl an I easily lose sight
of where I am going and how I should get there.
"Just Don't Think I'll Ever Get Over You"
Colin Hay
Necessary again!
I decided to make a list of
things I should do. Not things that "have" to be done, but should be done. This way
there is no emergency and no self-berating if I just cannot do them…But the mission
is to accomplish just one thing a day. Just one thing is enough to make me feel
accomplished, even if only a little bit.
There is also the physical act of writing it and erasing it when finished. My studio door used to serve as my chalk
board “where am going and when should I be there” through the art festival
season. It truly was necessary! The
studio door chalkboard is proving to be necessary again today to keep me
pointed in a meaningful direction.
"Ants Marching" Dave Matthews Band
Friday, April 10, 2020
Jelly beans? Of course I can!
Another first is coming, and I cringe…He loved jelly beans…Easter
may have been his favorite holiday just for the jelly beans. He had an unbelievable sweet tooth. Jelly
beans, chocolate, and jolly ranchers were his “go to” every weekend at the Walgreens
and/or Dollar Store around the corner. It used to make me crazy, I would just look
at those things and gain weight. He ate
them like an addict and never gained an ounce! I still have some of his last Hershey’s chocolate
bar in the refrigerator. I know…I know..the day will come…but not today…and
today is about jelly beans.
I know friends and family are watching to see if I am
recovering. I am accepting that I never
will, but also learning that it is ok.
I remember our stories – his story, every day. It’s not just
a story. It still matters. It still hurts. It is still love.
The truth is, being happy, recovering, living now does not
negate the pain of his death. They don’t cancel each other out. I carry both of
them. Those two realities share the same space, side by side. They most likely
always will.
Last week, I went to the dollar store, and there were jelly
beans everywhere! I could not help myself and of course, I bought jelly beans
for Skip…and here they sit on the kitchen counter. This morning Jill (my awesome DIL) texted and
asked if I could bring jelly beans for Easter.
Of course I can!
"Don't Give Up" Peter Gabriel
Wednesday, April 8, 2020
Busy all of the time...
Just when I think I am doing so well, then there is stay in
place, and I feel like I have been losing ground. All of a sudden this comes across my computer
screen and I get what I have been doing.
At first, I worked like a crazy woman, cleaning out closets, cupboards, throwing
out and donating bags and bags of stuff, some were Skip’s but not all. As that began waning, the opportunity to be a
part of Nude Nite and another exhibition (that has been canceled) and the
studio was wonderfully frantic!
But now…after 3 weeks of confinement…stir crazy is setting
in and I find myself not only fighting all that comes with that but also
wrestling with the emotions of losing Skip again. Wondering if I am just plain crazy or even
masochistic…maybe this post explains it and this whole virus thing may be a
gift that forces me to finally finish this emotional work, acknowledging the
sudden death of a loved one is more than just death it is a trauma. I am not implying that a quick unexpected
death is more painful than a death that is expected. The best analogy I can come up with is,
slowly peeling back a band-aid spreading the pain out over time or just ripping
it off. I suspect it is the same amount
of pain, just a different experience of it.
My band-aid may still be hanging on.
"Haven't Got Time for the Pain" Carly Simon
Tuesday, April 7, 2020
Subversive and revolutionary...
Granted…my subversive activities are now limited to
illegally watering my front yard and writing here. Neither are risking more
than a finger-wagging scolding so maybe subversive may be a bit of a stronger
word. But in past years, I was pretty
good at it. In fact, there were times that I made it my mission to do
specifically what they told me I could not do.
It was pretty much a red cape-bull situation. In full disclosure…it did not always work. But when a good part of your life is spent on
the road doing the art festival circuit and being herded like cattle and
organized into 10’ by 10’ squares marked on the street, learning how to
covertly “workaround” was necessary for survival.
Writing here has been exposure, I often hold back not
wanting to be a whiner, or a baby, or all of the other negative things. I was terribly ashamed of those feelings. Not understanding has always presented itself as shame in my
life.
"Shame on You" Indigo Girls
Sunday, April 5, 2020
...it means acknowledging my reality, pain, love and loss.
It is the 5th…again. And as hard as I try, the
memories of that morning roar back into my heart. My head and rational thinking
cannot stop or control the grief and pain. I remember it like it was
yesterday and am still afraid it will happen again, even though I know it is
impossible.
Darren called and told me Jill was on her way to pick me up,
he was at the hospital, Skip had been brought it by the ambulance. We arrived and they took us straight back to
a small (not patient room). A nurse came in and said Skip appeared to have had
an aortic aneurism and they were working hard.
Less than 2 min. later a doctor arrived and told us he did not make
it. I did not understand what “did not
make it” meant and asked if we wanted to see him…Of course, I did, I still could
not grasp what he meant “did not make it”. I was a normal Monday morning we had
had coffee together and I had just waved goodbye when he left for work 2 hours
ago.
I still cannot explain that first the look at him, the confusion
and devastation of that moment. I see it my dreams every night, but on the 5th
of every month it feels like I re-live it…and it is really hard. It is the one memory I want desperately to
let go of…and I just cannot seem to do it and I do not understand why.
"Won't last a day" Carpenters
I know this is sappy, but sometimes it just is what it is
Saturday, April 4, 2020
Here's to the crazy ones!
I expect after this quarantine there will be more of
us! More and more I see TV and the
internet extolling the benefits of being creative. What still bothers me…that is, if anyone
really cares, is that as a society we still think of creativity, in general as
something to do when there is nothing else to do. It never seems to be what a person would make
as a first choice, before laundry, yard work, dishes, etc….Creating is my first
choice, does not really matter what kind of creating…well that is not so,
cooking is not part of my creative process…that smacks too much of a list of
rules (recipe) following process. Whatever we do, do what you love first just keep 6 feet away!
"Crazy, Crazy, Crazy" Michael Franti & the Spearheads
Friday, April 3, 2020
her confidence....
I have lost a great deal of my confidence. Confidence comes from a steady life
foundation and when that world that foundation falls apart so does
confidence. You may officially list this
one as 32-B on the list of things people do not tell you after the loss of a
life partner.
So, now it is just me and it
is all up to me to create my own confidence and my own happiness with this
giant hole in my life. But millions of
people do this every day, in fact, all of us will have to do it in one way or
another. I am beginning to feel like it
is time to wear my very own confidence. I had it once, it just has to be in here somewhere!
"This is Me" Kealy Settle
Thursday, April 2, 2020
Ironic
Timing is everything, and for me, that has been an issue my
entire life! A day late and a dollar short might be the best way to describe a
good part of my life!
So here we go again! As a chronic unsuccessful overweight
dieter, I have lost 8 lbs in 2 weeks. It
was not hard, I am just not hungry.
What??? The easiest diets I have ever been “not” on! I think this is a “Yay”!
Then to add to this, for the first time in my life I have
had carte blanch to do what I want, whenever I want, as long as I feel like
it. How many times does that happen in anyone’s life?AND….now we are in a stay at home order. Damn
the irony!
"Ironic" Alanis Morrisette
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