life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Sunday, July 1, 2018

But for now I have internet and I am crossing my fingers!

GROUSING AHEAD!                      I am back!  After being told it would be 4 days before CenturyLink technician, and this is the 7th time in 6 months we have had to wait for days to have a repairman tend to a problem that could not be corrected by them “refreshing” our system from their office and that has worked on occasion. We decided it was time to change companies.  In this past year, I have taken advantage of “smart home technology with uses the internet.  We have Alexa placed in several locations throughout the house and I call (phone) via Alexa if I need help and cannot reach my phone.  And after passing out, (which has now become a part of this disease) we decided that a camera and a coded door lock would allow “Help” to get to me, even if I could not get to the door.  I also use it to turn lights on and off so I do not have to walk in the dark to get to the bedroom.  Yes, it is extravagant, but it gives me such peace of mind and allows me to stay as independent as possible for as long as possible. With such unreliable service, I explained that I  wanted to cancel them after 11 years (actually we have been with this company since 1978, but it has been bought out many times) CenturyLink replied I could not cancel them, I had a contract with them until 2019.  When I asked for a copy of that contract, I was transferred 3 times to a man that said it was a verbal contract and I had to have a court order to get a copy of it.  WHAT???? So I have opted to just not pay next month’s bill and return the equipment.  If necessary go to small claims court. That’s all!  And now I hope our new service provider has more consistent service.  But for now I have internet and I am crossing my fingers!
"All Right Now"  Free

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