life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Wednesday, July 3, 2013

Why not me??

Yesterday’s noon news included one of their “health” reports, which I typically ignore, but this one was about the glorious results that were being recorded with the cardiac stem cell clinical trials. The very same trial that 2 years ago I actively campaigned to be a part of. I was on the short list for both Johns Hopkins and Shands but after extensive and invasive testing, I was inevitably deemed “not a viable candidate” for either of the trials. I was so sure I was going to be accepted, and was emotionally devastated, by both rejections. 

I have moved on, put the rejections behind me, but perhaps not as well as I thought. As the news video continued to broadcast this particular stem cell recipients glowing recovery, I found myself overwhelmed with those past feelings of elimination, anger welled up and I find myself wallowing in negativity.

I am angry, I want them to tell me, right now, why not me. Why didn’t you choose me!

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