life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Wednesday, July 3, 2013

Why not me??

Yesterday’s noon news included one of their “health” reports, which I typically ignore, but this one was about the glorious results that were being recorded with the cardiac stem cell clinical trials. The very same trial that 2 years ago I actively campaigned to be a part of. I was on the short list for both Johns Hopkins and Shands but after extensive and invasive testing, I was inevitably deemed “not a viable candidate” for either of the trials. I was so sure I was going to be accepted, and was emotionally devastated, by both rejections. 

I have moved on, put the rejections behind me, but perhaps not as well as I thought. As the news video continued to broadcast this particular stem cell recipients glowing recovery, I found myself overwhelmed with those past feelings of elimination, anger welled up and I find myself wallowing in negativity.

I am angry, I want them to tell me, right now, why not me. Why didn’t you choose me!

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