life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Thursday, October 11, 2012

Loosing Ground


I had to stop, re-group and remember this one, because I am angry and I want desperately to “throw dirt” at the medical industry.  

It is more business and less care. Fashioned after a corporate manufacturing business that produces immediate results, efficiency and profits, they have forgotten at its roots it should be about people. In emergency health situations, immediate results are easy to identify but in long-term chronic illnesses, they are truly in need of work.  

The medical industry plugs every health situation into a standard rubric to come up with the logical (you will be cured) conclusion. They have not figured out that chronic illness and our lives already have a “standard” conclusion, but it will not fit into the, “you will be cured” rubric. Trying to mash me into that rubric makes me (and the medical industry) feel like a failure. 

Nobody wins! 

It does not have to be like this! 

It should not be like this!


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