life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"



Saturday, April 9, 2011

So, for my next trick…I will have a little rant!

I have had a marvelous week, feeling better than I have in months. So, for my next trick…I will have a little rant!

After a year (and then some)of blogging on the subject of heart failure I sometimes wonder what more can be said? Then again, perhaps there is much that needs to be said, but publicly, and by other more qualified individuals than I. Perhaps the Surgeon General or the President of the United States…or maybe our new (cough-cough) Governor Scott should step up.

Make no mistake, when it comes to finding a cure for heart failure, its all about money and politics. Plenty of time and money is spent on fancy machines to diagnose, because that is how they generate money, but our money is reinvested in bigger hospital buildings and more fancy sophisticated tests!

Money will make the difference in the end; money will fund the research that finds cures. But you cannot get money as long as there is apathy. And you can’t eradicate apathy without generating interest. So perhaps that brings me back to square one…now that I have a few good days I think I will make some noise.

I am truly grateful for all of you that continue to send me encouragement and kindness. I am so much better for it, especially in my head, my heart and my soul. I am better because of my awesome family and creative friends, not the tests and the medical industry!

So, please take good care of yourselves and love each other. Be mindful of your own bright future and the life you make; and be wary of charlatans and ignorance that would have you live in the dark.

Make some noise!
Demand the best of your politicians, doctors and yourselves

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