life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Thursday, April 14, 2011

I feel like cr-@#p!

The one insidious understated, overlooked symptom of heart failure is this overwhelming crappy feeling. The one where I feel like a swollen slug that just wants to crawl under some wet leaf and sleep. And sleep. And sleep. And sleep. Trouble is, when I am in these funks, no matter how much I sleep (and I can sleep until my jammies feel like they are permanently stuck to my skin) I just can’t seem to get enough. I wake up just long enough to take a bite of something already partially eaten, sip some warm tableside iced tea, wriggle my toes to get some blood flow reestablished and go right back to sleep.

I am learning to accept feeling like crap. But when I add this crap to the already top-heavy pile of psychological baggage this disease has created my life begins to resemble the teetering back of the Clampett’s truck on the way to Beverly Hills.

So, I’ll be the one in the rocking chair perched on top of that heap… sleeping.

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