life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Thursday, March 7, 2013

Building the New

In the past few years, friends and family will tell me how wonderful I look, I always assume that means that I do not look sick. I am also grossly aware of when I am not looking so good, because those same incredible wonderful friends and family will not say anything at all. I suspect that falls under the heading “If you can’t say anything nice….”   

On the good days (and there are many more of those) I want to explain and justify why I am doing so much better than even the doctors and nurses expected, especially since most of the time I elect not to follow their instructions and medication. I am certainly not recommending this for anyone else, and I do not ignore them all of the time, but my body has been really good at letting me know when things are and are not working.   

It has been a journey and I will freely admit there have been wrong turns along the way. It has been hard to follow my “heart” (excuse the pun) against professional advice, but it has been the best thing I could have possibly done and it all boils down to one central idea that I have struggled to put into words. Then this morning a Socrates quote showed up on my FB page. His quote sang to my heart and it is the perfect explanation for my own magnificent healing!

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