life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....

I write to expose and work through the ugly parts of this raunchy disease. My words always help me understand that in this life there will be times that are crappy painful and unexpected but tucked in there are the amazingly wonderful, too. That is when I realized the only control I have over any of this is how I chose to experience them! I realized that I could understand, celebrate can survive even better when I could express these feelings with my own words of courage, humor, and grace. I am the Queen of my own life and the choice is mine!

I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure.

I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Monday, September 6, 2010

The First Casualty

I have made concessions to this disease. It has affected my daily life and has been extremely frustrating, but I can honestly report that until this weekend I did not feel like I had missed out on any event that I really wanted to participate in.

This was the first real casualty, the first time that the disease won. This time it has literally taken life away from me. Fear and pain paralyzed me, and I gave up a wonderful opportunity to share an experience with my children.
I hate this!
How much more life will I allow heart failure claim?

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