Self Worth Comes from Within…

Well, that’s what the self help gurus say. What they fail to mention is how to go within and get it! They offer up gratuitous examples of how we lost our self worth, but no lessons or models of how to get it back. I chronically hear their eloquent declarations that it “comes from within” with the typical recommendation to regurgitate painful past experiences along with affirmations then reach up in there and whip out some self worth on command. They make it sound like it is as easy as finding a set of misplaced car keys with an electronic buzzer. Clap your hands, listen for the buzz, and follow the sound to the misplaced keys.
Self worth is not that easy.

In my case, mix some long term self worth issues, a terminal disease with the current bureaucratic red tape of the medical/Medicaid system and it creates the perfect no self worth storm. On the other hand, the only thing that I am absolutely certain of is that compared to what some other’s deal with on a day to day basis, my self worth issues are no more than a spit in the wind.

Self worth is just not important anymore.
I have opted for gratitude.
I am grateful for all that I have, all that I have had and all the wonderful opportunities to come. Gratitude does not require an excruciating walk through past painful experiences or chronic repetition of affirmations. I really do not want to waste anymore of my amazing life in a desperate pursuit of the egotistical concept of self worth when my heart is full of gratitude now?

I prefer, gratitude, simple gratitude.
Gratitude is easy.
Thank you!

augh......

set backs really suck!

Miss You Dearly...

It is a sad evening, and I just cannot seem to hold back tears any more as I feel 2 people that I know and love slip out of my life, one by choice and one loosing a long battle at the end of a wonderful life. As much as I hurt and want to go back in time, I know that cannot happen. I hope they will know how much more wonderful my life has been because they have been in it. I am grateful and wish you well on your next journey. I love you and will miss you dearly.

I want to...

I want to really really live.
I want to laugh til my stomach tightens and my face cheeks ache.
I want to cry from my heart and let the tears wash me to where I need to go.
I want to feel the music and dance wildly.
I want to love so deeply that even my cells quiver.
I want to know that I'm worthy
i want to leave fear way behind me.
I want to fall to my knees in gratitude for this gift of life I have been given.
...I know what a gift it truly is.

If I Could Trust

I have been afraid for so long now,
the idea of trusting myself seems foreign....
if I could trust...
if I can just trust myself and my body-
I just might learn how truly powerful I can be!

See me?

Why can’t I see me?
Why am I still chasing my purpose and asking why am I here?
Why can others see me more clearly than I can see myself?

Recognizing My Strengths!

How many times have I almost crumbled to the ground? It is time to stop, I am looking at how far I have traveled and all it has taken to get here, and recognize my strength. The strengths I have always had inside and the strength I’ve gained along the way. I am standing up, standing tall, facing forward, and gratefully continuing on.

Now

Now.... it is time to let go of fear and embrace my strength!

With My Whole Heart

Golda Meir said “those who do not know how to weep with their whole heart don't know how to laugh either.”

I keep reminding myself that this is a balancing act. Surely the bad scary days will be equalized by great, full, and wonderfully creative days.

I have already cried….

the most authentic thing...

This one was so good I just had to re-post it here!

If I Ignore Fear?

I have an abundance of fear.
It is always hanging around me.

I’m grossly aware of it,
its heaviness,
its constancy.

There’s something in it that forces me, on what may be a spiritual level to consider that maybe, just maybe, it is a gateway to breakthrough, to blinding beauty, to realities yet un-imagined.

If I ignore fear, convince myself that it is irrational, pay no attention to its power, its message, its beckoning, will I miss something important; something true?

Could fear be what grounds me and draws me into the raw truth of life?
Can fear be not only important, but worthwhile?

Unexpectedly Weird

Unexpectedly weird is being blindsided by an emotion I never saw coming. Today I got one of those awesome “parking passes” you know the one? The blue tags that hang from the rear view mirror and let me park close to the grocery store door. Those are the parking spaces I have coveted all of my life, so I thought I would be absolutely ecstatic, finally I get the good spots!

The lady at the tag office pushes the parking pass across the counter, I loose my breath and all I can see is those huge horrible big white letters screaming at me (disabled). No grouping of letters has ever been this unexpectedly offensive to me.

Hoping the primo parking spaces will make up for nasty label I feel like I am now wearing.

I Did It!

Have you ever had a day that you worked, struggled, and grappled all day long, to simply maintain normal?

You know the ones that begin like any other regular day and quickly degrade into total chaos, where problems unfold one after the other with absolutely no warning and no time to catch your breath between them?

A day like yesterday!

And when the incredibly horrible day was finally over…I felt like I should regale each and every catastrophe, whine about the unfairness of it all, and then blame and complain to anyone that would listen. After all, that is how I had always done it before.

But surprisingly I find myself simply wanting to celebrate. I made it through a really crummy day, with all of its challenges, I figured it out, I fixed it, and I did it!

Woo-Hoo me!

What if

What if...

Doctors could see me
instead of my disease or finanacial status,
saw symptoms as a language,
my body’s very intelligent way of communicating,
saw themselves primarily as healing facilitators,
instead of disease managers,
and
understood that I have more power to heal me,
than all of the medicine they posess?

"Your Time is Limited" by Steve Jobs

“Your time is limited, so don’t waste it living someone else’s life. Don’t be trapped by dogma — which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.” ~ Steve Jobs

Healing

Healing does not mean curing. Healing does not eliminate disease or distress. Healing applies to me as a whole, curing only applies to a disease. If my life becomes identified by a disease it leads others to assume there is something faulty in this situation. Maybe this is why I detest doctors so much and shy away from people that love (feel sorry) for me, they only see me as a disease, incurable and faulty.

Maybe incurable, but definitely not faulty or capable of healing!

I Know What is Possible

Peace is available to me when I quit spending my life trying to reconstruct the past or manage the future. What is here NOW is so satisfying, so loving, and so unbelievably simple that once tasted, it changes everything. Now that I know what is possible, I cannot allow myself to settle for anything less.

What Do I Do Next?

Itchy to do something but I cannot figure out what!

Maybe it is an overload of HGTV (we just got cable) and think I should be creating some incredible piece of furniture out of someone else’s cast off. Then after a few episodes of “Hoarders” I am looking at my studio from another point of view. Wonder if they will send one of those big “Got Junk?” trucks to my house?

Artist’s Way Classes have ended, the exhibition is hung, the opening has successfully happened, and the grandchildren have come and gone home.

It is not that I do not have a ton of things that need to be and should be done, it is a question of whether I want to do them!

I am having an attack of “What do I do next?”



3 days later.....
HGTV won out and I ended up at the Habitat Re-Store buying then cleaning up and painting porch chairs! While out on the patio I attacked by a seriously pissed off mosquitto, Now I really am itchy!

Correct + Safe + Certain = Scared

I don’t get to know what will end when.
I don’t get to know how long things will last.

I can play the odds;
align myself with the correct probability for maximum longevity, comfort, and ease.
Or I can focus on the possibilities that excite me and enjoy the journey.

I can choose the path of safe minimal loss and change;
Or I can get clear about what I want to do now,
and passionately embrace the unknown, figuring out the way as I go.

I can choose a group consensus, support, and medical assistance but even that is not certain.
Or follow my heart! (I am full of power when I follow my passion!)

The irony about choosing the path that seems correct, safe and certain is that it only guarantees one thing:

I will go through life wondering how things could have been
if only I wasn’t so scared.

All I have to.....

All I have to know
is that there will always be secrets.

All I have to understand
is that this is all they know how to do.

All I have to recognize
is that there will always be rationalizations.

All I have to do
is consciously choose not to participate.

All I have to learn
is how to let this go.
no more, no more

This Was So Exciting!

http://www.theartistsway.org/exhibitions.html
to read the actural article!!

Celebrating 40!

Sloshing around a disease whose logical progression is always down; there are no words that can express the little victories that occur when test results show that my heart has improved! From an original 15-20% Ejection Fraction a year and a half ago (how much blood my heart is able to push out with each beat) to an amazing approximate 40% is a miracle! I am celebrating!

Uncertainty

For someone that felt dependable when it came to keeping commitments (one of the few things I felt I was really good at!) this sudden uncertainty for me to make good on all of my plans is a source of tremendous anxiety and stress. Although I rarely feel 100%, I do, like most chronically sick people, have days that I function better than others. I just cannot predict what days those will be. As a result I end up feeling absolutely miserable when I make plans for a certain day and am just unable to follow through. Uncertainty sucks!

Pre-programmed

How many of my expectations and reactions are actually mine, and how many of them are preprogrammed emotional responses from parents, church, school and generational social standards?

There are big issues in my life that have made me grossly aware of pre-programming but they have also provoked some serious thinking and major changes. Unfortunately, no matter how aware I am of pre-programmed negativity, there are still times that little bits of bizarre behavior or snap judgments continue to slip through. Every now and again, I find myself reacting to a situation or drawing a conclusion based on ugly pre-programmed information from my past. After the situation has unfolded I realize that my reaction was not how I would consciously choose to react and it is very scary!

Simply being aware of this does not always seem to be the best way to control the pre-programmed negativity that creeps into my consciousness without my permission!

For now, the best I can do is be aware of my unrealistic expectations and reactions, take the time to investigate where these feelings are coming from, and then decide are these feelings really mine.

Am I mimicking others reactions because it easier to do than coming up with my own?

Conserving Energy

Last month the heart failure clinic taught me a host of little physical “tricks” to conserve my energy.

I needed it! I have allowed so much of my life energy to be wasted on negative emotional energy created by the medical industry’s inefficiencies.

Each medical entity (doctor’s office, testing lab, hospital, Medicaid, etc.) appears to work well within their own system. The negative issues seem to crop up when they have to work together. The medical industry is incredibly compartmentalized and critical communication is disturbingly absent.

Tests had been ordered and authorizations requested weeks ago, but the authorization requests have been ignored. Perhaps the strategy is, if they ignore me, I will go away. Maybe I should ignore the pre-recorded telephone appointment reminder to assess the test results they requested that have not been authorized or done.

This is not the first time I have been to this rodeo; you would think I would be used to it by now, but I continue to waste my precious energy on them. In my heart I desperately want them to care.

I cannot afford the luxury of thinking that my life is important to them, clearly it is not.

I cannot allow them to destroy the energy I have learned how to conserve or take away the joy and gratitude that my heart naturally has!

Almost Worth it

I find it interesting that my entire life I feel like I have been struggling to be regular.

I always tried to fit into a "do not stand out", "look like everyone else", and "do not be different" world. I struggled to be a regular sized person, with a regular house, driving a regular car, with 2 regular children. Every day I did not measure up (which was just about every day) I felt bad about me.

Now… I have the nerve (or finally and more accurately do not care what other people think) to do and be the Cheryl I should have been all of my life.

So for those that have a need to feel sorry for me, DON’T this freedom is almost worth the disease

The Official List of “I Hate it Whens”…..2.0

Recent experiences have provoked another obnoxious list of experiences brought about by an outrageous, unreliable, dysfunctional, uncaring medical industry!

I hate it when…
I have to wait more than a year for test results to migrate from one doctor’s office to another. The offices are less than 20 miles apart.

I hate it when…
Those tests finally arrive and they suspect some are wrong, some are still missing information, and others detect a problem no one knew was there.

I hate it when…
I have to make an appointment to see a brand new (non-specialist) Primary Care Physician to get an approval to see the specialist I have been going to for over a year.

I hate it when…
The doctor’s waiting room has a piece of paper taped to the wall that says “This office WILL NOT give test results on the phone. It is the patient’s responsiblity to call the office and make an appointment to discuss test results.” Then the doctor writes orders to repeat and conduct 4 more ridiculous unnecessary tests. I have an extremely urgent need to post my own piece of paper on his waiting room wall!

I hate it when…
medicine makes me sick, I can do that all by myself, thank you. I do not need help!

I hate it when…
doctors, nurses etc. do not give a rat’s rump what my name is. Even the lousy phone company customer service rep will ask me my name.

I hate it when…
I appreciate anyone in the medical field that will just pretend to care as much about my heart as they do about my financial status.

I hate it when…
I am tired all of the time, it really sucks!

I liked it so much better when I did not go see doctors!
Why am I doing this again?

Damn!

more baggage...
more tests...
Damn!
(not as much writing, talking in clay!)

I Am

Things That Scare Me

All of my creative life I have limited myself to 2 dimensions it was just easier for me. Last year in the company of some wonderful friends in the AW lunch & learn group, I was cajoled into trying concrete sculpture. YIKES! First time ever working in 3 dimensions, and so very different! Three dimensions came up again, accidentally when fooling around with clay when some very interesting scary emotions erupted through my fingers. It was surprising! I have played around some more and more and more, and now this 3rd dimension is turning into real play!

I am learning to play with the things that scare me.
and....the less sense life makes the less sense my art makes, hmmmmm?

Doctors are Whipper-Snappers!

"Doctors are whippersnappers in ironed white coats
Who spy up your rectums and look down your throats
And press you and poke you with sterilized tools
And stab at solutions that pacify fools.
I used to revere them and do what they said
Till I learned what they learned on
was already dead.”
Gilda Radner

How great it was to find someone else feel the same way about doctors! I am not alone! Atta girl Gilda!

Shoot First! Then Draw the Target.

I obviously learned this lesson a little late, but not too late!
And here is the other big lesson learned, the targets I had always “shot” for in the past were not even MY targets.
Who knew I got to draw my own target?
Caution!
The shooting has begun...
the target drawing is still underway!

At Any Given Moment

I am overwhelmed at how difficult this thought has been to communicate to the medical industry. I appreciate all of thier efforts, but not to the exclusion of my wishes.

Art & Healing

Each of us has deep within us an inner artist and an inner healer.

The inner artist is the part of me that is passionately creative, that feels love, that feels connected to everything around me, that can see, that knows who I am, that I am at home, and at peace. My inner artist can go anywhere in the inner world. No place is closed to me.

The inner healer is the part of me that balances my body perfectly. It re-sets my heart beat when it gets out of sync. It keeps my blood flowing. It takes away my pain and shows me where to find joy. Art frees the healer within.

Art frees my spirit so my mind and body are in harmony. Art helps me conquer this disease by freeing my inner healer to work at its optimum.

Resurrection Fern

I am the proud owner of a fiesty clump of resurrection fern. I did not buy it or do anything to encourage it but here it is strategically situated in the maple tree just outside my window.

The UF web site describes this peculiar little fern as an air plant that attaches itself to other plant for nutrients. “The resurrection fern gets its name because it can survive long periods of drought by curling up and appearing dead. When just a little water is present, the fern will uncurl and reopen, appearing to resurrect. This tiny plant has even been taken on a space shuttle mission to watch it resurrect itself in space!”

I sat this afternoon after a welcome rainstorm and actually watched my little clump of brown curled fronds open up and change colors. It was AMAZING!

Gonna find me some of that water!

If the Hopers Only Knew!

"There is a secret medicine given only to those who hurt so hard they can't hope.
The hopers would feel slighted if they knew." — Rumi

I thought only I felt this way. It seemed so preposterous and undocumented that it certainly could not be so. Then try explaining this marvelous "secret medicine" theory to your friends and family (the hopers)!

In my heart,
I have always known,
I can feel it...

Bitch Moan Cha-Cha-Cha!

I try very hard to balance and maintain a realistic yet positive grateful attitude. However, there are times that a good bitch session seems to be in order so if you are new to my blog just hang in here; the posts are not always so grouchy. But, I thought I should give you fair warning!

Summer… While the rest of the country celebrates Memorial Day and the eve of summer with baseball, outdoor picnics, and fireflies, here in Casselberry FL we already have oppressive heat, outrageous air conditioning laden power bills and bloodthirsty mosquitoes. I am dreading another season of blistering the back of my legs from hot car seats, stinky sweat, and sticky humidity. Summer in Florida drags on and on for approximately 8 months, with fall, winter and spring sharing the remaining 4 months. It is a long hot prickly, itchy and expensive time of year that is best spent indoors and certainly nothing to celebrate!

And the cha-cha portion of this rant… I know I am about to get a universal boooooo, but thank goodness Dancing with the Stars is OVER. Not that I am looking forward to another riveting summer of reruns or another nail biting season of the Bachelor (ette) but I am thrilled Dancing with the Stars is done! I do enjoy watching the dancers but for every 45 seconds of dancing we have to endure 10 minutes of blathering commentary and vote solicitation. Then, as if that is not bad enough I get Dancing with the Stars, notifications served up with the morning news. Really….is this news?

As I proof read this latest grouse, I must confess, if this is the extent of my current complaints, I really am living a charmed life and am blessed in so many ways!
Woo-Hoo!

Gonna' Pull Up My Big Girl Panties One More Time

Gonna' pull up my big girl panties and deal with it one more time, another trip to the heart failure clinic.

Hoping this time there will be some answers, good or bad, I just desperately need answers!

whine…whine…whine

it’s hot, i am tired, don’t want to play anymore, think i’ll eat some worms.

As Long as I am Creating....

The only unique contribution that I will ever make in this world will be born of creativity.
If I want to make meaning, I need to make art. write, draw, doodle, paint, take pictures, collage, sculpt, dance, decorate, sing—it doesn’t matter. As long as I am creating, I will have meaning.

Finishing!

Final case study research paper is finished and turned in, one last algebra assignment and my brain gets a well deserved vacation.

I love finishing!

Finishing is a delicate mixture of satisfaction and surrender. Finishing demands I let go of expectations and surrender to the uncertainty of what comes next.

Surrendering is embracing the now, rather than clinging to what used to be or what might be.

It means for a little while, I just get to be.

The Book...I Finally Finished it!

Life, Art, Heart Failure & Assorted Rambling by Cheryl Jones Evans | Make Your Own Book

What More Could I Say?

The greatest BD gift from sister Kelly and perhaps inspiration for a tatoo on my chest before the next doctors appointment!

And…Life Goes On

Dealing with these big health issues has made me recognize the value of the little everyday things.

Shortly after diagnoses, I would get absolutely indignant when the phone bill would arrive in my mail box. Didn't they get the memo that I have terminal heart failure. I have no time for this unimportant day-to-day business? Don’t they understand that I have much more important, life altering, philosophical matters to attend to?

The next day the water bill would come.

Regardless of my circumstances the relentless flow of life continues, the grass/weeds still need mowing, dishes have to be washed, the floors need mopping and Progress Energy is serious about their “cut-off” date.

It is a humbling experience.

Life does indeed go on, and most of it happens in these everyday things.

Happy Birthday my heart, we have a lot of everyday things to do today.

I feel like cr-@#p!

The one insidious understated, overlooked symptom of heart failure is this overwhelming crappy feeling. The one where I feel like a swollen slug that just wants to crawl under some wet leaf and sleep. And sleep. And sleep. And sleep. Trouble is, when I am in these funks, no matter how much I sleep (and I can sleep until my jammies feel like they are permanently stuck to my skin) I just can’t seem to get enough. I wake up just long enough to take a bite of something already partially eaten, sip some warm tableside iced tea, wriggle my toes to get some blood flow reestablished and go right back to sleep.

I am learning to accept feeling like crap. But when I add this crap to the already top-heavy pile of psychological baggage this disease has created my life begins to resemble the teetering back of the Clampett’s truck on the way to Beverly Hills.

So, I’ll be the one in the rocking chair perched on top of that heap… sleeping.

So, for my next trick…I will have a little rant!

I have had a marvelous week, feeling better than I have in months. So, for my next trick…I will have a little rant!

After a year (and then some)of blogging on the subject of heart failure I sometimes wonder what more can be said? Then again, perhaps there is much that needs to be said, but publicly, and by other more qualified individuals than I. Perhaps the Surgeon General or the President of the United States…or maybe our new (cough-cough) Governor Scott should step up.

Make no mistake, when it comes to finding a cure for heart failure, its all about money and politics. Plenty of time and money is spent on fancy machines to diagnose, because that is how they generate money, but our money is reinvested in bigger hospital buildings and more fancy sophisticated tests!

Money will make the difference in the end; money will fund the research that finds cures. But you cannot get money as long as there is apathy. And you can’t eradicate apathy without generating interest. So perhaps that brings me back to square one…now that I have a few good days I think I will make some noise.

I am truly grateful for all of you that continue to send me encouragement and kindness. I am so much better for it, especially in my head, my heart and my soul. I am better because of my awesome family and creative friends, not the tests and the medical industry!

So, please take good care of yourselves and love each other. Be mindful of your own bright future and the life you make; and be wary of charlatans and ignorance that would have you live in the dark.

Make some noise!
Demand the best of your politicians, doctors and yourselves

Pain is Relative

Pain is relative. No, I don’t mean those unannounced visits from your family. I mean that when I think about my heart, I become very aware of it beating, my breathing, and the pain.

But when I am creating, I am absolutely pain free for so long as I remember not to realize that I am not remembering that I have pain (as she takes breath) and thereby ruin the fact that I wasn’t aware that I had pain. Um…yeah.

So my latest practice is to try not to think about my heart and maybe I’ll be less focused on my symptoms.

Good luck, me!

Out of my Comfort Zone

Algebra...(I hope I pass, I hope I pass...)
Facilitating Artist's Way on line
Physical changes

I am way out there where the magic happens...Bring it!

Some days this works better than others…

When life appears to be totally out of control this becomes the mantra of a certified control freak. "Whatever may or may not be happening to me, I can choose to feel exactly the way I want to feel."
Some days this works better than others…

How Are You Feeling?

How are you feeling?
More than a couple of people ask me that everyday and that is the reason I write…

I typically answer, fine but today I surprised myself and stopped. Today it was a tougher question. I wanted to say fine, because in a comparative way, I am. I truly have few complaints, but today I stopped short of fine because I am not. I have terminal heart failure, and although extremely grateful for my good days and all of the great health I have enjoyed I know what bubbles underneath is just like lava below the surface of my thin crusted well-being. So, I answer fine, even when it is not.

I am out of breath, swollen and tired all of the time. These are the parts of this disease that have become a part of my everyday life. Sometimes my chest hurts and is so heavy I think I am going to implode, but am afraid I can't tell the difference between my paranoid imagination and serious disease symptoms anymore. Then I wonder, does it really matter. It's terminal heart failure, it’s pointless to worry. And even though I don’t want to worry, I will worry just the same. Go figure @$%*@

I don’t know what condition my heart is in, because I don’t want to know, I'll only worry. Better or worse, good or bad, functioning at maximum capacity or not, I don’t want to know any more. I don't want any more degrading, toxic, invasive, nuclear exams that doctors deal out like a cheap deck of cards. Besides, a walk to the end of the block and a couple of glasses of pinot grigio and I can produce the same results as the high priced atom smashing machines. (There is a reason for those lead aprons!) Quite frankly, I’d rather get smashed by the pinot, then I'll send them my results and a bill.

Why do I need to know all of this information, I’m not sure I should…no, scratch that, I do NOT want to know. If God wanted me to have access to all of that information, I’d have a daily paper read-out spew from a bodily orifice somewhere.

So, instead of feeling sick, waiting for them to run tests to tell me I am not getting better or feeling well, waiting for them to tell I am still sick, I have decided to just be. I have discovered, without the aid of the medical industry, that the best way to feel better when I feel like crap is to force myself to get up and just create something. That’s one of the reasons I paint, draw and write this blog.

Now… who wants another pinot?

It's The Little Things!

It's the Little Things by India Arie

Love, Strength and Possibility

What if my limitations are illusions manufactured by my own fears?
What if my fear is not a circumstance of reality; but my own simple ugly pessimistic thinking.
Fear manipulates, controls, paralyzes.
Can fear continue to exist if I move my thoughts beyond it?
Can fear survive in the presence of love,strength and possibility?

....nope

Here it is Again

I have the most wonderful heart,
It knows what to do
I trust
It knows what to do
I am grateful
It knows what to do

my peace

my peace will come when I understand i cannot fix this and let it be.
my peace will come when I recognize the circumstances I am in and let it be.
my peace will come when I accept people for what they are and let it be.
my peace is in every moment that is free of ego, judgment and control.
my peace is now,
if I can let it be.

The Stronger I Grow

I do not have to surrender to or fight for control;
I simply need to focus on the people and things that create positive influences.
The more positive energy I create and surround myself with, the stronger I grow.
The stronger I grow the more control I have to do away with all of my fear, hurt and chaos.

Full Moons

No doctors or pills, can do anything near as amazing as a full moon,a bottle of wine, a blazing fire and the most marvelous creative friends. I am blessed to be on this path!

I'm Working On It....

Revelation #1

I have had a wonderfully simple and incredibly enjoyable DIY (do it yourself) life. I grew up in an extremely harsh and emotionally volatile environment but I grew up strong. For the most part, this has served me well as an adult. However, I am now realizing my definition of strong firmly incorporates the idea that asking for and accepting help is a patent sign of weakness. Combine this ingrained defense mechanism with an overpowering need to prevent this disease from consuming my independence and you have the perfect irrational inability to ask for and/or receive help.
Intellectually, I understand the problem I just do not have all the answers yet, but I am working on it!

Revelation #2
is not an all together new one, but it always bears further investigation.

There is a gigantic emotional support void between disease diagnosis and the end stages of life. There is some support at the onset and counseling available in the end but nothing for the in between. I am left out here on my own, twisting in the wind, desperately trying to make sense of this life while maintaining some meaningful purpose. The doctors are only interested in keeping me alive longer; I am only interested in being fully alive now and emotionally prepared for the end.
I know, as do most terminal patients, the gruesome details of how this will end but what I want right now and crave more than anything is some good old fashion “Slap my ass, it ain’t over yet, honey” information on how to capitalize on my existing strengths and to live fully, in the now. Not another lame relax, conserve your energy, avoid stress lecture. (Sorry, I got a little militant here. I am working on that, too)

Revelation #3
and the big finish!

I do not honor this incurable disease. I will not give it any more power over my life by extending how long it lasts.
I do want to live the rest of my life fully present with extreme purpose. I want tons of love and laughter (and no pity) regardless of the physical circumstances and/or consequences. I am stealing a quote from the movie Steel Magnolias, that says it best, “I’d rather have 10 minutes of wonderful than a whole life time of nothing special.”

You may have realized by now that I am really good at indentifying problems but not so great at immediately identifying a solution. Again, I am working on it!

Listen but Do Not Hear

They listen but do not hear.
Opinions ignored
Agreements broken
Secrets kept
Hurt disguised as a good intention still hurts
I take responsibility for allowing myself to be hurt.
I have learned a hard lesson.
Next time,
I will listen and I will hear.

Happy Heart Day!

Celebrating Valentines Day!

Tell Your Heart

“Tell your heart that the fear of suffering is worse than the suffering itself. And no heart has ever suffered when it goes in search of its dream.” ~ Paulo Coelho

I could not say that any better, so I won't even try. However, Me and my heart will continue searching for my dream!

Breathe

Struggle, fight, grapple, scrap, tussle, battle……breathe....
Just breathe

Nap

Wow...I was just VICIOUSLY attacked by a nap. Sneaky little dickens came out of nowhere and took me down before I could yell for help!
Whew! I made it through!

Filling the Well

to restore my heart…

A day with my three wonderful grandsons! They have so much energy it seeps out of them and gets into and on everything, they get close to. All I have to do is be near them to absorb some of that magnificent energy!

A perfect lunch full of the most delicious and incredibly decadent foods, celebrating our 82 year old (and still very handsome) Dad’s birthday with and my incredibly supportive sisters.

An evening in the company of the most creative women I have ever known, as we attended our dear friend’s first public poetry reading. She was magnificent!

My well is full!

Making Significant Progress

“When you encounter much difficulty and resistance, it is because you're in the process of making significant progress.”
Wise words tweeted at me this week.

I think I like the idea that all the crap I have had to deal recently is the universe giving me the heads up and saying, “Get ready girl-really good stuff is on the way”!

I Do Not Know What That Is

Desperately searching for all the things I want to accomplish, while I still can, I have learned that I have no idea what I am doing. There never have been any long-term directions or distinguishing themes to my life. I always managed to rise to the typical expectations, but nothing more.

I am feeling desperate to achieve that marvelous life that will fulfill me.
I am feeling more overwhelmed and worthless than I have ever been.

How do I be everything I want to be, even when I do not know what that is?

Powerful New Ways to be Strong

In the New Year 2011, I planned a big renaissance for my life, my art and career…
I got pneumonia. Obviously, reinventing my life has not gotten off to a great start.

I freely admit that I do not know how to (nor did I really want to) experience life from a less than perfect point of view. So this past year while experiencing rather magnificent health for someone with heart failure, I reformulated what I was capable of and for all intensive purposes, it did not include limitations.

Limitations have made an ugly and abrupt arrival.

My lesson is to become honestly aware of my physical weaknesses and limitations.
In so doing so I will find powerful new ways to be strong.

It is Amazing

It is amazing that the part of me that is sick is the one part of me that keeps me going.

I am blessed to have such a strong heart that knows in a mysterious way that its function is so much more than simply pumping blood.

Wisdom of My Heart

The best way to honor my life is to follow my heart!
Asking the questions,
Quietly feeling the answers
Trusting in the strength and wisdom of my own heart.

2011 Resolution

In 2011,

I will look to my own heart as my compass;

I trust it will help me see more clearly which direction to go to create an inspirational life.

I am grateful that I am on a path that will bring me closer to my purpose in life!

The Greatest Gifts Do Not Fit Under the Tree!

A most awesome fun visit! Of all the gifts under the tree, these little guys are the real gifts of Christmas. My heart breaks for them every day!

The Heart May Open

“Close the door of words that the window of the heart may open.” Rumi

This season brings out the best and the worst!
Mixed in with the random acts of kindness are massive amounts of vulgar ego.

I am just now learning how to open up and depend upon my heart.

It Makes Anything Possible!

The Christmas season and anticipation of a brand new year fill my heart with positive thoughts, forgiveness and hope. The disappointments in the past cannot equal the power of love that gives my heart and soul all of the energy I could possibly need. It makes anything possible!

Listen to Your Heart

Listen to your heart when it asks you to act with kindness. Your heart knows what truly fulfills you.
Listen to your heart when it suggests that you be patient. Your heart knows how real and lasting value is created.

Listen to your heart when it calls you to live this moment with joy. Your heart knows what makes you the most effective.

Listen to your heart when it urges you to see profound beauty in the most ordinary things. Your heart knows where your real strength comes from.

Listen to your heart when it reminds you to feel hopeful. Your heart knows about possibilities that your mind has not yet considered.

Whether you're up or you're down, whether you're confident or unsure, listen to your heart. For your heart knows why you're here.

- Ralph Marston

No Matter What the Circumstances

I am not my problems and they are not me. I choose to express my unique value no matter what the circumstances.

Great Joy

Pain is part of life.
Accepting the hurt and moving forward anyway is the secret of happiness.
When you encounter great difficulty and resistance, it means you are on the verge of great joy.

Abstract Medicine

Ab-strakt (adjective) emotionally detached or distanced from something Encarta Dictionary: English (North American)

The idea of empathy, sincerity and caring about another human being as part of medicine is abstract.

Like a painter participates in a process that includes a relationship with the paint and the canvas, I wonder why my doctors cannot participate in the process that includes a relationship with medicine and me.

I am learning to make peace with the fact that in the eyes of most of today's medical industry I (and others) are nothing more than a billable disease.

"....9 out of 10 doctors think you should get well immediately, the 10th doctor thinks you have a few bucks left". (posted by my brother in-law Alan, fellow heart patient)

I DO NOT give permission!

I DO NOT give my permission for doctors, hospitals and drug companies to exploit this disease and my fear for their their financial gain. And, quite frankly I do not have the resources for them to be that interested.

The Real Loss

Life entrenched in material comfort without purpose, can be misery.
Life surrounded with purpose is sweet and fulfilling, even when there are obstacles, questions and pain.

Some how, I was convinced to spend far too much of my life working toward a concept that society defined as successful.

I was convinced that my heart and soul’s purpose could not be enough to create a happy life. I always needed to be more, or better.

Please, believe me when I tell you that every moment of my life
that I was NOT pursuing my purpose
is the real loss that I grieve.

Turkey Birthdays

The wonderful opportunity to spend the day with all of my boys!
1 husband, 2 sons, 3 grandsons (and a partridge in a pear tree!) for Thanksgiving and Jason's and Oliver's birthday was a huge gift.
This was a most wonderful day and I am incredibly grateful!

Full Moon Fridays

There is absolutely nothing better than being outdoors on a crisp fall evening around an open fire, under a full moon with a hand full of marvelous creative women. (A little wine and chocolate don’t hurt either!) The most open, honest, authentic creative inspiration appears on full moon Fridays! Thank you!

Art, Heart & Healing

Art Journaling class! (on line) So much Fun!

Here & Now Music by Jana Stanfield

Almost Perfectly Wonderful!

Had an adventurous purposeful day!
Was able to keep up as we walked the school corridors and see at the most creative art works you could imagine!
Had an impeccable lunch on the patio with Herbie Hancock,the resident rooster.
Concealed the exhaustion in the bookstore stacks then slept for 3 hours.
But there are no words that will be able to express how tickled and grateful I am to have an almost perfectly wonderful day with absolutely perfectly wonderful friends!

Don't Talk Like That!

I come to this blog to squeeze fear out of my life
I can expose and work through the parts of this disease
that I (and most everybody) do not want to look at or talk about.

I can come here and write about fear.
I can explore my fear before anyone can say “don't talk like that.”

I can work through the ugly questions...

Do I give the medical industry permission to exploit my fears because I have been too afraid to accept death as part of life?

How could I allow the pharmaceutical industry to define my life when I know their only interest in me is a means to generate profits?

Why don't they ever ask me what I think or what I want?

All Hallow's Eve

Two vampires
A witch
A ninja
A ghost
How fun!
I missed halloween last year,
not missing this year!
Here comes another ghost and
an e-mail from University of Miami
stem cell research....

I Wonder if He Knows.

Gauguin inscribed on one of his pieces,
“Where do we come from?"
"What are we?"
"Where are we going?”
If he were still alive,
I would answer him.

I don’t know.
I don’t know.
I don’t know.

I wonder if he knows now?

The official list of "I Hate It When’s"

So, in the interest of my sanity, and my one year anniversary and since this is the forum to express myself; not the doctor’s office, I will keep this short and pithy…

I hate it when, I am forced to think about breathing or my heart beating.

I hate it when, my heart flip-flops and scares the be-Jesus out of me.

I hate it when my toes look and feel like "Snausages" doggie treats.

I hate it when, I have to tell Skip I don’t feel good —again.

I hate it when, I feel like death warmed over.

I hate it when, the nurse takes my blood while fighting with her boyfriend on a cell phone crooked in her neck.

I hate it when, I think of doctors (but I suspect they hate thinking about me, too)... We’re even!

I hate it when, doctors toss pills around like candy and....oh hell, I'm not going there....

I hate it when, my chest hurts and feels so full, I would not be surprised if the next moment looked like a scene from "Alien".

But...
I love that I am still here and I can come to this blog, and be myself, whatever myself is that day.

OOOOH...That felt good!

Happy Anniversary Heart, You are doing a great job!

Options

Acceptance is the foundation of emotional options.
If you are not accepting the facts,
nothing else will work.
That’s all!

The ability to exercise my emotional options rests on a foundation of acceptance.
Acceptance is the absolute prerequisite to beginning,
NOT ENDING!
A year ago, the beginnings of this stage of my life were fear, despair, shame, fear, guilt, resentment and fear.
Oh, Did I forget to mention fear?
All of these starting points had one thing in common.
They are all rooted in giving up all of my other emotional options.

I have a second chance to begin again by celebrating life, choosing acceptance and exercising all of my emotional options!

PS..these are the flowers and the second installments to "MY HEART" book that wonderful creative friends gave me, and Terry got me a totem and soap. It was like Christmas!

Don't I have some kick-butt friends?

I Have the World's Greatest Kids!

Grown, responsible, awesome, marvelous children! How did I get so lucky? I am blessed!

Learning to Let it All In

I have done more damage not acknowledging difficult emotions. It is time to let them all in, deal with them, then let them go. I cannot change the past.


All That We Let In Indigo Girls

Healing my Heart

The family calendar (my sister publishes every year) is completely void of anything Cheryl, no birthday, no anniversary, or admission that I am alive.
I do not exist.

The same holds true for my brother, without the tangible calendar evidence.
I do not exist.

There are no discussions, we do not argue or fight.
We do not owe each other money or property.
We simply did not agree with each other at sometime in the past.

I need all of my heart, to heal my heart,
I acknowledge the damaging blockade in my heart created by the pain I ignored.
I am letting go all hope of having a loving relationship in the future or a chance to repair the damage from the past.

I release my resentment and hurt.
I allow myself to grieve.
I forgive.
I exist.

ooooweee-ooooweee ouch ouch

bad day

The Emotions I Knew

Big life changes are the breeding grounds for negative emotions!

I am scared, I am not good enough and it is just too hard
slip into my thought process without me realizing it and certainly without my permission.

I know these negative emotions have been and always will be with me, but I want to get back the emotions I knew, the emotions that made me strong, creative and confident.

Will I ever have control?

The one thing that makes me, ME are my emotions.
They are the same things that take over and create insurmountable amounts of grief and chaos.
My head and intelligence knows what should be done, then my heart and emotions take over, and it becomes a pandemonium.
Will I ever have control of these emotions?

What if?

"If you play the game of life, you'll have plenty of wins and losses, regardless of your talent level.
Being inspired means that you're willing to act upon your inner impulses so that you'll never experience the pain of dying while still wondering,
What if?"

- Dr. Wayne Dyer

That’s the way it is.

There are things you can always count on.
Day will follow night.
Spring will follow winter
and healing follows sickness.
That is the way it is.

I am ready to get on with it

Cracks

Approaching one year and able to look back and assess the emotional damage left in the wake. Noticing parts of me that have grown stronger and deeper but watching others slip and fade away in the distance. I work hard at covering the emotional cracks hoping that no will notice, but I suspect they still show.

Cathy

"I love you! You are brave. You are full of courage and power. You are one of the lucky ones. You are willing to change. I love you. I am good to myself, I care about me, I want the best for me. I love you. I am full of love for myself and others. There is more than enough for all. I love you!"
-Cathy Phelps (Cathy's last blog entry)


Missing my friend, missing having someone that really understands how it feels. Loving her strength and courage.

A Friend Reminded Me

There is a great deal of insight available to anyone that stops and looks with in. However, sometimes it takes looking out side to see the real world.
A visit with a friend reminded me.
Without saying a word, she told me to embrace each day. Do not worry so much about the future, it will come whether I am ready or not. Thank you, Cathy

The First Casualty

I have made concessions to this disease. It has affected my daily life and has been extremely frustrating, but I can honestly report that until this weekend I did not feel like I had missed out on any event that I really wanted to participate in.

This was the first real casualty, the first time that the disease won. This time it has literally taken life away from me. Fear and pain paralyzed me, and I gave up a wonderful opportunity to share an experience with my children.
I hate this!
How much more life will I allow heart failure claim?