life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I am here to celebrate my life, to uncover my fears, to hold on to love, to grieve my losses, to laugh long and hard, and to learn how to live a full magnificent life with heart failure. I am honoring my creativity, and exploring all of my emotions out loud ...before anyone can say....."Don't talk like that!"


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Thursday, November 29, 2018

...one does not exist without the other!

I have to admit, contrary to this quote, there have been times I discredited my own gut instinct. If I had always listened, and/or obeyed that first knee-jerk instinct, there would have been so many things I would never have done…art shows, gallery exhibits, teaching etc…etc.
…Some of those first-time instincts were screaming…wrong, failure, they are going to laugh, you are breaking the rules! But...there is an instinct that has just as much power. It is the power that keeps some directed, focused, hungry and often times willing to sacrifice anything to reach it. I suspect “instinct” or “want” or “direction” or “passion” is the magic ingredient that must be present. It is the part of your gut that sees the possible failure but is willing to risk that failure to learn. I have watched absolutely, unbelievably, incredibly talented people go on in life… but thoroughly frustrated and stuck. They have such amazing “tools” but somehow are missing the instinct or passion to risk failure to bring those talents to complete fruition. I often wonder if it is that frustration that pushes someone to turn back into a specific religion or someone else’s beliefs and immediately inhibit their own abilities to grow and develop all of their own magical potentials.

What I learned is MY GUT INSTINCT was the combination of other people’s/religion/ beliefs desires for me mixed with a very small part of my own…When I was able to separate what were my wants and needs and what were other institution’s and people’s expectations of what I should want and need, I finally began to experience my own desires and passions. So many become married to tradition and other people's acceptance, and will never understand, but some…you might know them as the great artists, musicians, mathematicians, physicists (those that broke the established rules) and so on that will continue to astound and inspire human potential and creativity. They are the evidence that each of us has that same power.  I will never discredit my gut instinct again, but I listen carefully and long enough to hear both sides of instinct... the fear and the passion..knowing they must both be present.... that one does not exist without the other!
"And Your Bird Can Sing"  The Beatles

Friday, November 23, 2018

Moon Child


I do not think after all of this time, there is anyone that does not already know how I love full moons!  They never fail to amaze me, excite me and make me feel full of miraculous energy. There are all kinds of reasons this may be, everything from some seriously scientific explanations to some really airy-fairy ones.  It really does not matter to me!  Whatever magic it is…it is significant and has been acknowledged, celebrated, entire civilizations have built around it and honored it with countless creative works.  I need no serious answers just a beautiful regular reason to celebrate life…I am a moon child…
"Moon Dance" Van Morrison

Thursday, November 22, 2018

Turkey Day memories....(aka things I have done to NOT cook on Thanksgiving!)

Long ago and far away…sometime in the early 1990s, Philadelphia, and long before I had enough smarts to say NO, I had an up close and personal experience with the Thanksgiving day parade!  Yep, me and 10 other grown-up idiots and a160 member high school marching band that my son was part of!

There isn’t a Thanksgiving….that memories do not come flooding back as one of the most harrowing experiences of my life.   160 Florida teenagers on the Philly streets at 6:00 AM in 30-degree snow flurries for a 9:00 AM parade. We were woefully unprepared, extremely underdressed and I can truly list this as among the top 3 coldest I have ever been in my life!

I used to sit and watch the parades on TV with the kids as they marched around the coffee table with my upside down pots playing them like snare drums with my cooking spoons.  It was so fun to see them march in their own parade!  It made even me, excited about experiencing the “real” thing when the opportunity arose many years later.

However, once you have been a part of the organized craziness of lining up a huge televised parade with all of those bands and floats in the worst circumstances ever…all I can say is…I now know why they invite different marching bands each year…no one…and I mean no one would voluntarily return.  It is one of those Thanksgiving day experiences that you mark up to…glad I did it..the band kids had a blast...but…this is the goofiest thing I ever did to not cook on Thanksgiving!
A thanksgiving day parade...

Give thanks doing what you do best (no kitchen required!)

There are some women and most men that have been born and survive daily without the desirable “cooking gene”. Science has not yet unraveled the mysterious set of circumstances that prevent the cooking gene from developing in the normal human being. This DNA anomaly is a lifelong condition that literally millions of people live through daily! The most glaring evidence of this condition is an irrational fear of the kitchen, followed by panic outbreaks in grocery stores and an inability to follow recipes. For those of us living daily without the cooking gene…..Cooking is another horrifying household chore, just one-step above cleaning the toilet.
You can only imagine how terrifying Thanksgiving is for women (and most men) that suffer with “NCG” (no cooking gene) of an entire annual holiday that is dedicated to cooking. Yes, they tell you that it is about giving thanks and being grateful, but that is a clever ruse. It is about cooking and eating! So where ever you are, whatever you are doing I hope you will enjoy it, do it well and give thanks in the way that you do best (no kitchen required)!

"Honky Tonk Women" Rolling Stones

Wednesday, November 21, 2018

Strategically calculated misbehavior!

This is not to say that I do not do significantly stupid stuff now, but just not quite as bad as in my teens where I could have quite possibly been walking a fine line of legality and I am not even going to broach the moral and social issues!    I cannot imagine how any young person escapes unscathed in today’s world of everyone knows everything!  My saving grace may or may not have been moving out of the area, getting married at 21 and no internet!

I left home the night of my high school graduation because I just could no longer stand the gossip hounds, busybodies, and the know it all’s of a small town.  I did not run far, but I did run to a larger metropolitan area where I was completely anonymous, there was some culture (although at the time not much, but more than where I came from) and I am ever so grateful for living in a more educated politically “blue” area….but the buggars all still have internet and misbehavior has to be strategically calculated…that is....if I do not want to get caught!
"Good Girl"  Julian Moon

Tuesday, November 20, 2018

or, in my case the "wine" person

Or in my case, the “wine” person!  Thanksgiving has never been one of my favorite holidays…well, let’s call a spade a spade…I absolutely detested Thanksgiving.  I never ever understood how me working all day in the kitchen, which I hate and am bad at could possibly be classified as a holiday…cooking, serving, cleaning and then going to work the next day…big fun…NOT! But for years and years and years, I did it with a smile on my face.  Nowadays…going out to dinner or to someone else’s home with a bottle or 2 of wine is a much much better definition of a Happy Thanksgiving! So lucky to have grown children close by...it is a wonderful thing...and I am free of cooking Thanksgiving Dinner!
"I'm Free" Imagine Dragone

Monday, November 19, 2018

That simple...







That may explain it better than most!  Unfettered by rituals, rules, and regulations that were designed for social, political and religious structures that are thousands of years old, a spiritual person is free from the irrelevancy of archaic rules.  Free to follow their hearts and love.  It is just that simple…


"Peace be Upon Us" Sheryl Crow

Wednesday, November 14, 2018

The "what-if's"

Breathing is a good thing… 2 weeks of wheezing and hacking are finally ending!  Holy Crap!  Each time I have these fairly routine rounds of pneumonia they get harder and harder to whip!  This time it took 2 rounds of antibiotics and upping the steroids.  The great news is that I have a nebulizer (which we doubled) and Oxygen at home.  The equipment and weekly nurse visits keep me out of the hospital, and that is the best thing! Hospice is awesome!

It feels great to just feel good again and so looking forward to taking some of my life back!  On the “damned if you do-damned if you don’t” program we have decided to keep the steroids at a higher dosage.  They do seem to make my life stronger but they come with a “what if” kidney side effects down the road price and more of an immune system compromise.  But the risk is worth it!  This choice is an easy one for me (and apparently easy for the docs, too).  It is all about life NOW…having the best most productive life I can get right now…After years and years and years of the “deny pleasure, patience is a virtue, wait, save” program, it feels kind of strange to work from an opposite point of view…but it also really does feel kind of good, and I find myself wondering why I did not think this way much earlier in life, not all of the time….but more of the time… I think I would have been much happier!
"Good Life" One Republic

Thursday, November 8, 2018

"voice of reason"

Kind of what happened yesterday!  I have been struggling with a raunchy infection in my lungs, just breathing has been a challenge for more than a week now….ahughhhh!  The first round of antibiotics brought some relief but it did not take long for the symptoms to return, coughing and breathing even more difficult, and beginning to involve my head and ears this time.  When Ed came first thing yesterday morning and after the standard poking and prodding…announced your lungs are clearer, but we have a long way to go.  NO SHIT!  Dr. EVANS….me…. recommended another round of antibiotics and increase the steroids I am over this and so ready to be done.  After Ed spoke to the real doctor…we are going with more antibiotics and upping my daily steroids….yikes…following my recommendation!  Could be trouble! When I am the voice of reason....
"Die Trying" Dave Matthews

Wednesday, November 7, 2018

I am ashamed....

My heart is broken and my embarrassment is even worse. I am ashamed of Florida’s political ignorance. Mortified by the white people and money myopia, as a racist prepares to ascend to governor and Medicare con man goes to Washington, I wonder what has happened to people’s honor?  Although, how much more should I expect from the land of “The Villages”, Willis McCall and bible thumping trumpian Christians?  It does feel like am flying a whole new flavor of racism, and maybe I am.... but do we no longer hold people accountable for their actions?  I guess the new rule is to do what you want if it feels good, if it gets you what you want, blame others, lie, cheat, and steal. It does not matter if it is right or wrong.  Are honorable and decent the tenets that only apply when they are convenient?  The one thing that brings some comfort, is the Democrats became the majority of the House and it is returning the country to a 2 party system and a quote by a CNN reporter. “We no longer have a one-party rule - now there are more female, younger, warmer, browner, Muslim,  Native Americans in office.”
"Time Has Come"  The Chambers Brothers

Monday, November 5, 2018

The worst it can do is suck!

The weather is a bit cooler; I have literally done NOTHING for almost 2 weeks…It was time!  The little outside grill sits on this small counter height old table.   Years of being outdoors and having a hot “drippy” little gas grill have really taken a toll on the wood top. It seemed kind of silly to refinish the wood but some old tile, broken plates and grout put a new face on it.  Feels good to do something…even if is bad!
"Light On"  Mark Ballas
Oh...I have been playing with new watercolor crayons.....

Thursday, November 1, 2018

Maybe next time asking for help will not be so damn hard!

For my northern friends...the only way I know it is fall in FL when the
grocery store pastes construction paper fall leaves in the produce department.
These are REAL FALL LEAVES!
And just about the time, I think maybe, just maybe I might be getting a tiny grip on what this journey and dying is about…it slips away from me.  The most magnificent friends and family have offered and have asked me to call if I need help….and I have promised that I would let them know when I need it…but then it occurred to me that I cannot let them know when I need help, because quite frankly, most of the time, I do not know myself.

So when she called and asked… I said yes…I did not want to say yes. I am afraid to need help, to give up any of my independence. “Help” to me feels like being weak, or quitting, or not being good enough.  And OMG I hate it.

But today may have been the best thing I have done in such a long time!  She picked up my groceries, the one thing I really was not supposed to do, but then she brought me homemade leftover roast beef, fresh green beans and carrots and roasted potatoes…so so good and some great REAL FALL “turning” leaves from up north. One of my “Bucket List” trips to see the leaves turn, that I screwed around and waited too long to do!  She taped the leaves to my front window and “poooof” Fall is here!…. Thank You, A….you made my day!  Maybe next time asking for help will not be so damn hard!
"Summer Song"  Chad & Jeremy

Tuesday, October 30, 2018

still.....fearless

So I apologize....this is a re-run from 2013...and I just really needed some fucking fearlessness to fight another round of pneumonia.  Fought like a crazy woman to keep it at bay...and I lost....so I have to depend on this spectacular body and another round of antibiotics to prove to me and the world I am stronger and better than this...and I am still laughing, living, loving, creating, dancing (well that may be questionable) and still incredibly, wonderfully, magically grateful for this life...I am not done yet!




The world does not expect me to be happy, powerful and loved.

I take away the power of unrealistic and false expectations,
every time I smile, giggle 
and do something I am not supposed to do!

Laughing, living, loving, creating, dancing
and incredibly grateful every day!

fucking  fEaRLeSs…..
"All Star"  Cover by OrtoPilot

Wednesday, October 24, 2018

Time for my sacred pause...

Have no idea who the author is, it just arrived on my FB page.  It was just the message that I needed today.  Sometimes struggles sneak up on me when least expected.  It was detected yesterday and today it is a whopper.  There are pieces and parts of me that my heart just struggles to support and it just takes one little blip in the program to throw everything off!  So today I have got some wonky lungs and the nebulizer is on double duty, the hopes of cutting down the prednisone are nixed and we are back on the heinous lockdown program….Damn, I hate when this happens…It just must be time for my sacred pause…
"When Angels Cry"  Janis Ian

Tuesday, October 23, 2018


and it sold! 
It has been so exciting to be a part of this charity art auction!  One local artist wanted to “do something” to help some of the incredible devastations of Hurricane Michael…and so he invited 173 artists to join him and we began a week-long online auction with the hopes of raising $20,000….As of this afternoon 3 days in…we just hit $80,000.00.  It is just amazing how wonderful people can be even in the midst of the political stink we all seem to be stewing in.  And on top of that, my art ego was in dire need of a little kick in the ass.  I have spent the best part of my life creating and selling art.  I loved it! As that part of my life has come to an end, …so have my own feelings of self-worth.  This was so nice to have my work sell again…to feel validated again as an artist, to be who and what I love.  This did so much good in ways that I did not expect…and it is truly wonderful!
"Belly Belly Nice"  Dave Matthews Band

Monday, October 22, 2018

I have created something!


I do not know how to say it any better. It does not matter what happens now,  I have been given the amazing gift of knowing that I created something…I created a whole bunch of somethings and every single one of those somethings was nothing more than my heart singing how happy it was… that is why I am here!
"Shaking the Tree"  Peter Gabriel

Sunday, October 21, 2018

Any day now…you could be in my shoes!

I will not vote for one single Republican, because every single Republican voted against me (except one, and unfortunately he died).

When some of you ask why am I so involved in this election? It is because the quality of my life literally depends on it.  I have a pre-existing
health problem and am an ACHA (Obama Care) Insurance participant.  It is the only insurance that will cover me, and I pay dearly for it, well over $400 per month that is estimated to go up to over $500 a month if it stays the way it is.  I am not complaining about the cost, although I would love for it to not cost so much.

I rarely share publically that I am in end-stage heart failure, in hospice care and my insurance pays for their amazing, loving, supportive palliative care!  If the Republicans win…and impose their current health care proposals it means I will have a much more painful difficult medically unsupported and harder death…it is that simple.  It is that ugly.  The quality of my life depends on my insurance and hospice...and every living Republican Senator voted against me.

Any day now…you could be in my shoes!  So I vote with and for my heart! I hope you will, too!
"Heart of a Hero" Cathy Heller

Tuesday, October 16, 2018

Not While I am the Queen!

I have recycled this one from my FB page...but thought it was worth posting again....

So….I am thinking there may be some that still do not understand how my Facebook page works. In the real world, I have very little control over what happens to me now.  But Facebook is NOT the real world…This page is “Facebook Cheryl Land” and I am the absolute queen and ruler of all that I and others post here! I am not a newspaper or TV network required by law to give equal time to all sides.  If you choose to be negative, combative, pessimistic, caustic or just plain disagreeable on my page… I will delete… I choose for my page to be positive, constructive, encouraging, peacefully active and just a little deliciously witty wicked anytime I think I can get away with it.  The one thing I have learned… above all, is that I have never solved one problem in my life with fear, hate and/or negativity and will not allow it to begin here or now!  Not while I am the queen!
"Think"  Aretha

Sunday, October 14, 2018

So Damn Easy





Most of the time carrying their expectations and their beliefs had become such a habit; I did not even realize how much crap I was carrying around. Nor did I realize how important it was for some of them to convince me that their way was the right way or the only way.  I know now…  I do not have to defend me, I do not have to convince them. I do not need a team or a congregation.  I just have to be me….why do we make it so hard….when really …It is just so damn easy.
"Wonderful Unknown" Ingrid Michealson

Friday, October 12, 2018

I am peaceful but I am NOT powerless!

Quite frankly, it took about all I had to screw up my courage and unfriend then post like yesterday. I really do want to be the one that everybody likes! 

Yesterday’s unfriendings included a family member and  Artist Way tribe members. They know me and deliberately posted very negative remarks anyway. It would have been one thing if they publically posted “I disagree with you” and here is why… but that was absolutely NOT what was done.  My space was used to spread their (or in this case others) fear and negativity. It was an unbelievable display of how powerful and ugly negative can be, as I really do not think this is how these people really are, but then maybe I am wrong. But they were negative words in my space...My heart was squealing…standup …do not let them use me and my space to spread this!

I do not expect nor do I want everyone to agree with me.  Dear god what a boring world that would be!  But I do not expect anyone to deliberately be ugly or rude because they do not agree with me either.  It boils down to simple honor and respect for another’s ideas, especially when they do not harm. I am not tidy, predictable, or holier than thou but I am not powerless either.   
"Take Me As I Am"  Mary J Blige