life, love,art. heart failure and assorted ramblings

life, love,art. heart failure and assorted ramblings

Don't Talk Like That...

I write to find out what my heart thinks....
I write to expose and work through the ugly parts of this disease, open heart surgery that was less than successful and more recently an S-ICD (internal cardiac defibrillator) implanted in my chest that will hopefully restore my heart beat in case of sudden cardiac death. I am here to celebrate my life, to uncover my fears, to hold on to love, to learn how to live a full life with heart failure, to honor my creativity, and to explore all of my emotions out loud ...before anyone can say
"Don't talk like that!"


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Sunday, November 20, 2011

There Will Be NO Cooking!

When I turn on the TV there is at least one cooking show on every minute of every day on some channel and it is portrayed as a fun and fulfilling experience that can satisfy your need to be creative and keep the family well fed and healthy.

My response to this latest entertainment trend is BULL $#!+! Where is the cooking program for the “I Hate to Cook” people? Where is the station that promotes the 3 ingredients or less recipes?

This year I am not celebrating Thanksgiving in the traditional way! I will indeed be giving thanks, but not by using every pot & pan in my tiny kitchen, cooking bad food all day, washing, soaking and scraping all night, then stuffing a refrigerator full of leftovers that will probably spoil before they are eaten and eventually be thrown out. And of course the worst part, the incredible guilt I feel because by the end of Thanksgiving Day I have truly hated the entire experience, and am anything but thankful.

This year I will be celebrating Thanksgiving with what ever family (or friends) are interested in spending time together, eating convenience foods and being grateful for all the blessings of this life.

There may be creative conversation, or funny stories, or painting, or parade and football watching.
But....there will be no cooking!

Wednesday, November 16, 2011

Important Things


Maybe I scare them?
One day...
I suspect they will see
How silly most of this life is and
How simple it really was to focus
on the important things.

Saturday, November 12, 2011

Without Permission…

Taking my power back has been the most significant healing thing I have ever done for myself. Taking power back may be a new and difficult concept for some, but once you have it, it is a great thing that you will never let go of!

In the past I felt like I did make up my own mind, but I have learned that realistically I was so afraid of making the wrong choices that I culled opinions, listened to doctors/nurses and pled my case for public consensus before making a decision. I critically weighed all input, (seldom listening to my own heart) before making any major decision. In most cases I went with popular opinion or what the “biggest” expert recommended, and then grieved and doubted my decision. Each little choice kept me questioning myself and my own judgment wondering it I have done the right thing, and what will happen if I didn’t.

Not once did it occur to me that my real power comes only from listening to my own heart and my body.

I trust myself, I am perfectly willing to make mistakes and learn from the consequences associated with my decisions.

I am taking my power back, without permission!

Saturday, November 5, 2011

Self Worth Comes from Within…

Well, that’s what the self help gurus say. What they fail to mention is how to go within and get it! They offer up gratuitous examples of how we lost our self worth, but no lessons or models of how to get it back. I chronically hear their eloquent declarations that it “comes from within” with the typical recommendation to regurgitate painful past experiences along with affirmations then reach up in there and whip out some self worth on command. They make it sound like it is as easy as finding a set of misplaced car keys with an electronic buzzer. Clap your hands, listen for the buzz, and follow the sound to the misplaced keys.
Self worth is not that easy.

In my case, mix some long term self worth issues, a terminal disease with the current bureaucratic red tape of the medical/Medicaid system and it creates the perfect no self worth storm. On the other hand, the only thing that I am absolutely certain of is that compared to what some other’s deal with on a day to day basis, my self worth issues are no more than a spit in the wind.

Self worth is just not important anymore.
I have opted for gratitude.
I am grateful for all that I have, all that I have had and all the wonderful opportunities to come. Gratitude does not require an excruciating walk through past painful experiences or chronic repetition of affirmations. I really do not want to waste anymore of my amazing life in a desperate pursuit of the egotistical concept of self worth when my heart is full of gratitude now?

I prefer, gratitude, simple gratitude.
Gratitude is easy.
Thank you!